Dec 112025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

McFadden brags about cutting disability benefits, just as his own strategy warns of ‘deep material poverty’ 1

Minister misleads MPs as mystery deepens over new £2 billion cuts to disability benefits 3

Duty to disabled passengers in railways bill is ‘too vague’ and must be strengthened, MPs are told 5

Peers urged to ‘err on the side of caution’ and raise minimum age limit in assisted suicide bill 7

Scottish and UK governments are failing to uphold disability rights, says watchdog 9

Thousands of disabled people in one county should benefit from care charging legal case victory 11

Other disability-related stories covered by mainstream media this week 14

 

 

McFadden brags about cutting disability benefits, just as his own strategy warns of ‘deep material poverty’

The work and pensions secretary has bragged about cutting disabled people’s support, three days after launching a child poverty strategy which warned that more than a million children in families where someone was disabled were living in “deep material poverty”.

Pat McFadden told the BBC’s Laura Kuenssberg on Sunday that his government had halved the health element for new claimants of universal credit because “under the Tory system we inherited, people got double the money for declaring themselves unfit for work”.

And he said he did not rule out further cuts to benefits.

But his comments on Sunday morning came three days after his Department for Work and Pensions (DWP), alongside the Department for Education and the prime minister, had launched Labour’s new Child Poverty Strategy.

The strategy’s evidence pack states that “single parent families and families where someone has a disability (are) particularly overrepresented in deep material poverty”.

In 2023-24, according to the strategy, there were 1.3 million children in a family where someone is disabled (22 per cent of those children) who were in “deep material poverty”.

The evidence pack points to disabled people’s “high additional living expenses such as transport, home adaptations, or specialist equipment”, while “caring responsibilities or accessibility issues can mean that it is difficult or not possible to find work that suits [those families’] requirements”.

The report itself says that “deep material poverty is especially pronounced for children in single parent families and children in families with disability”.

And it adds: “There are parents who may not be able to work, for example due to severe disability, or who fall on difficult times outside of their control.

“It is not right that we have a system where children are penalised through no fault of their own.”

Three days later, McFadden boasted to Kuenssberg about doing exactly that by slashing the health element of universal credit for most new claimants by about £50 a week from next April.

Announcing the Child Poverty Strategy, the government said it would lift about 550,000 children out of poverty by 2030 and tackle the “root causes of poverty by cutting the cost of essentials, boosting family incomes, and improving local services”.

Measures include making it easier for new parents who receive universal credit to return to work by extending eligibility for upfront childcare costs to those returning from parental leave; ending the unlawful placement of families in bed and breakfasts beyond the six-week limit; introducing a new legal duty for councils to notify schools, health visitors, and GPs when a child is placed in temporary accommodation; and taking measures to help families buy more affordable infant formula.

The government had already announced at last month’s budget that it was removing the universal credit two-child limit that was imposed by the last government in 2017.

Asked by Disability News Service (DNS) to respond to McFadden’s comments, and to say whether he would apologise for his misleading statement about claimants “declaring themselves unfit for work” – when there is a lengthy and harsh “fitness for work” assessment process – a government spokesperson said: “We are reforming the broken system we inherited by tackling perverse incentives around sickness claims, increasing face-to-face assessments, and investing £1 billion to help sick and disabled people into good, secure jobs.

“We want a welfare state that supports those who need it while helping people into work and delivering fairness to the taxpayer.

“That’s why we’ve launched the Timms Review to make PIP fair and fit for the future, while Alan Milburn’s investigation into young people and inactivity will help us tackle the key barriers behind youth unemployment.

“Thanks to our decision to scrap the two-child limit and introduce a wider package of measures for families we will lift 550,000 children out of poverty by the end of this parliament.”

This week, McFadden also released a written statement updating MPs on his department’s plans to improve its record on safeguarding benefit claimants.

It details a series of actions taken since a report on “safeguarding vulnerable claimants” was published by the Commons work and pensions committee in May.

Much of the statement had already been included in a letter he wrote to the committee on 18 November, on which he was questioned by the committee the following day.

McFadden admitted in this week’s statement that an assessment of DWP’s safeguarding approach had found “some good practice, but also variation in awareness, skills, and accountability”.

He said the first year of a new five-year DWP strategy would focus on “raising staff awareness of safeguarding responsibilities, building capability through training, and strengthening relationships with local authorities, health services, and voluntary organisations”.

He will publish a DWP safeguarding policy framework next year, setting out the department’s “comprehensive approach”.

McFadden said DWP “remains open to adopting a statutory duty” to safeguard claimants, one of the key recommendations in the committee’s report.

But there was no mention in his statement of the committee’s call for a new independent body to investigate cases where claimants have been seriously harmed by DWP’s actions.

DNS has previously shown how senior civil servants and ministers spent more than a decade covering up evidence that linked DWP’s actions with hundreds, and probably thousands, of deaths of disabled people who relied on the social security system*.

Documents secured through freedom of information requests, inquest reports, and investigations by bereaved family members show how DWP destroyed incriminating records, failed to share crucial evidence with its own independent reviewers and grieving relatives, and even lied to a coroner.

*The Department: How a Violent Government Bureaucracy Killed Hundreds and Hid the Evidence, DNS editor John Pring’s book on the years of deaths linked to DWP’s actions and failings, is published by Pluto Press

11 December 2025

 

 

Minister misleads MPs as mystery deepens over new £2 billion cuts to disability benefits

The disability minister has refused to apologise after misleading MPs about concerns over nearly £2 billion in new cuts to disability benefits.

The Department for Work and Pensions (DWP) has added to these transparency concerns by itself providing misleading information about the cuts, and again refusing to clarify how many disabled claimants will be affected, and how much they will lose.

Two weeks on from the budget, it is still unclear how DWP and its ministers intend to cut £85 million next year, £310 million in 2027-28, £520 million in 2028-29, £580 million in 2029-30 and £455 million in 2030-31, from spending on disability benefits.

Treasury documents, published on the day of the budget, show the cuts are connected with increasing DWP’s “capacity” to carry out reassessments of claimants through the work capability assessment (WCA), increasing the number of face-to-face benefit assessments, and “extending Personal Independence Payment [PIP] award reviews periods”.

The budget costings document says these changes will “ensure people receive the right health or disability benefit and the system is sustainable”.

But it is unclear from budget documents exactly how these changes will cut spending on disability benefits, and how any cuts will be split between disabled claimants of PIP and universal credit.

Last week, Disability News Service (DNS) reported the government’s refusal to explain how it will cut spending through these measures, despite repeated requests for clarity.

Following the DNS story, the Liberal Democrat work and pensions spokesperson, Steve Darling, asked in Commons work and pensions questions for an explanation of how disabled people would be impacted by the cuts, which he said had been “quietly sneaked into the budget the other week”.

DNS has been seeking clarification on the cuts from DWP and the Treasury since 26 November, the day of the budget.

And on 1 December, DNS copied in Sir Stephen Timms – the minister for social security and disability – to an email to DWP’s press office, highlighting concerns that he was breaching the post-election pledge he made 14 months ago to improve transparency within DWP.

The email asked for an explanation of how the £1.95 billion in cuts would be achieved.

But responding in parliament on Monday (8 December) to Darling’s question about the DNS report, Sir Stephen told him: “I do not know what the honourable gentleman is referring to.

“I will happily look into the report he has spoken of.”

When DNS then asked if Sir Stephen would apologise for misleading Darling and fellow MPs, the DWP press office itself produced a misleading statement.

It said: “The £1.9 billion in welfare savings were announced by the chancellor at the budget and set out in full in the budget document.

“This will be delivered through measures such as tightening eligibility for overseas pension accrual, reforming Motability, and reducing duplication in benefit administration.”

This is not correct.

The budget costings document makes no mention of the Motability tax changes or pensions in its brief section on the £1.95 billion cuts to “health and disability benefits”.

Instead, the document refers to “operational improvements to health assessments”, including the WCA, “changing the frequency of Personal Independence Payment (PIP) award reviews”, and plans to “increase the number of face-to-face health assessments conducted across both PIP and the WCA”.

Asked why it had provided further misleading information on top of Sir Stephen’s misleading answer to Darling, DWP had not responded by 11.30am today (Thursday).

Meanwhile, Liberal Democrat MP John Milne asked Sir Stephen on Monday if he agreed that the widely-ridiculed claim by Tory shadow work and pensions secretary Helen Whately that “millions are getting benefits for anxiety or ADHD along with a free Motability car” was “clearly nonsense” and “one of the least accurate claims ever made by a politician”.

Sir Stephen said he agreed, although he said that “choosing the most misleading claim is a tough contest”.

Another minister was asked by Liberal Democrat MP Caroline Voaden why one of her constituents in South Devon had spent “nearly two weeks calling the DWP every day to find out why his employment and support allowance had been stopped without warning”, but “each time he called, he waited for over an hour, only for the line to be cut off with no reply”.

DWP minister Andrew Western said such service was “unacceptable” and he promised to “look into it on her behalf”.

The SNP’s Chris Law asked Sir Stephen what action he was taking after nearly 1,000 new and existing claimants had a work capability assessment cancelled by private sector contractor Maximus since 9 September 2024.

He said a whistleblower had told him cancellations were “a regular occurrence, largely because of IT services provided by the DWP”, with one of his Dundee constituents having their WCA cancelled five times.

Sir Stephen said he would be “happy to look into the details”.

11 December 2025

 

 

Duty to disabled passengers in railways bill is ‘too vague’ and must be strengthened, MPs are told

A statutory duty in the new railways bill to ensure ministers and public bodies promote the needs of disabled passengers is “too vague” and must be strengthened as the legislation passes through parliament, MPs were told yesterday (Wednesday).

The transport select committee was hearing evidence from experts a day after the government’s railways bill passed its second reading in the House of Commons.

Emma Vogelmann, co-chief executive of the disabled people’s organisation Transport for All (TfA), welcomed the inclusion in the bill of a statutory duty that will force those in charge of the railways to take account of “the needs of disabled persons”.

Labour had previously dropped plans to ensure there was a statutory duty on accessibility in the bill.

But Vogelmann told MPs on the committee that the duty’s wording was “very vague” and “too unenforceable” and “doesn’t guarantee improvements for disabled passengers”, despite the “desperate change that is needed in terms of accessibility”.

She said TfA wanted the bill strengthened so there was a duty to “actively and continuously improve accessibility across the rail network” and ensure there are “measurable outcomes” that show what progress is being made every year.

The bill currently says that ministers, Great British Railways (GBR) and the Office of Rail and Road will have a duty to carry out their roles – alongside other statutory duties – in “the manner best calculated to promote the interests of users and potential users of railway passenger services including, in particular, the needs of disabled persons”.

But Vogelmann told the MPs the legislation should be strengthened to “make sure that accessibility is enforceable and that it is an over-riding, consistent priority for Great British Railways as opposed to at the moment where we feel it is potentially not given enough enforcement power and it is subject to political will in some instances”.

She said the current wording of the duty was “almost purposefully vague”, which risked perpetuating the “tick box” culture and lack of meaningful action on accessibility across the rail system.

She added: “The lack of enforceable standards, the lack of enforceable actions, is really why disabled people feel excluded from the rail network at the moment and why many of us face so many barriers.”

The previous day, a string of MPs had highlighted the need for meaningful improvements to accessibility on the railways, during the bill’s second reading.

The bill will create GBR, a new publicly-owned company that will bring together management of passenger services and rail infrastructure.

The government also plans to use the bill to introduce a stronger passenger watchdog and to simplify fares and tickets.

Transport secretary Heidi Alexander told MPs the bill would “sweep away the fragmentation and dysfunction that have plagued the railway for too long and will bring the 17 organisations involved in running the railway together into one public body, Great British Railways, which is the directing mind that this industry has long called for”.

Many MPs in the debate called for improvements to the government’s Access for All programme, which funds access improvements at rail stations.

Conservative MP Mark Pritchard said “more needs to be done on step-free access” because there was “currently very little in the bill that suggests that more will be done, particularly for rural stations such as Cosford, Shifnal or Albrighton in Shropshire.

“If it cannot be done at every station, and there is no money for that, there at least needs to be step-free access and improved disability access somewhere along inter-county railway lines.”

Adam Dance, the Liberal Democrat MP for Yeovil, said: “Too many rural railway stations are not accessible for disabled people.

“Without support staff, constituents in Yeovil have had serious accidents at railway stations.

“Although the government’s accessibility priorities, which we are debating today, are welcome, does my honourable friend agree that we need a strengthened Access for All programme?”

Keir Mather, a junior transport minister, told MPs he had “heard the calls from colleagues across the house about the importance of the Access for All scheme”, and that the government was continuing to fund the scheme.

Disability News Service reported last month that the government’s new “roadmap to an accessible railway” – covering England, Scotland and Wales – appeared to suggest a reduction in real spending on the Access for All programme, with the roadmap promising a future commitment to only spend “up to” £70 million a year.

Conservative and Liberal Democrat MPs voted against the bill receiving a second reading, but it was easily passed by 329 votes in favour to 173 votes against.

11 December 2025

 

 

Peers urged to ‘err on the side of caution’ and raise minimum age limit in assisted suicide bill

Peers have been urged to “err on the side of caution” and raise the minimum age limit for an assisted death from 18 to 25, as part of a controversial bill that aims to legalise the practice.

As the House of Lords again debated some of the hundreds of amendments proposed to the terminally ill adults (end of life) bill, peers were told that a minimum age of 18 was “contrary to the mounting evidence of when the brain is fully formed”.

Labour peer Baroness [Luciana] Berger told fellow peers last Friday (5 December) that social media had become “a powerful driver of harm” and that research showed young people in vulnerable situations were “disproportionately exposed to posts that glamorise suicide or present suicidal thoughts as normal, appealing or even fashionable”.

She said she was “haunted” by the words of a young disabled woman who had said in evidence at an earlier stage of the bill: “I’m in care. I’ve got disabilities. The government will pay for me to die under this bill, but it won’t pay for me to live.”

Baroness Berger reminded peers that the children’s commissioner, Dame Rachel de Souza, had said she would “far rather that we erred on the side of caution, protecting those who have had terrible lives, terrible experiences, have been abused, have had their families turn them out, protecting those [with] extreme mental illness, protecting those with special educational needs and disabilities, protecting anorexic children who are heading into adulthood”.

Baroness Berger said: “I am clear that we must continue to say to children and young people: ‘Yes, your life matters. Even if it will be a short life, it matters.’”

Labour peer Lord Falconer, who is sponsoring the bill in the Lords, said he believed 18 was still the right age, but that “maybe the answer is some assurance that there is a more intense assessment for people aged between 18 and 25”.

The issue is likely to be debated again at the bill’s report stage.

Meanwhile, the disabled Conservative peer Lord [Kevin] Shinkwin warned of a further attempt to “weaken” the bill’s protections after Lord Falconer proposed an amendment that would affect the adjustments that must be made for those with language and literacy barriers, including people with learning difficulties.

The bill currently states that doctors assessing someone for an assisted suicide “must first ensure the provision of adjustments for language and literacy barriers”.

But Lord Falconer suggested in his amendment that doctors should instead “take all reasonable steps to ensure… effective communication”.

Lord Shinkwin said he failed to see how the change would “do anything other than weaken this bill” and would “fundamentally weaken one of the bill’s safeguards, such as they are”.

He said the bill “makes a mockery” of the Labour party’s “fine, noble and honourable tradition” of “advancing disability rights”.

He said: “It shreds a tradition that deserves to be preserved, not sacrificed in such a profoundly cynical and misleading way as to make out, as the amendment does, that this is somehow only a drafting change.

“There is a reason why not one organisation of or for disabled people supports the bill; they know that disabled people need the bill like a hole in the head.

“I marvel that the noble and learned lord does not seem to realise that the bill is dangerous enough already without the removal of provisions that would at least acknowledge the obligation to first ensure that communication adjustments were made; for example, for people with learning disabilities or users of British Sign Language.”

There was also criticism of Lord Falconer’s proposed amendment by Baroness [Nuala] O’Loan, the human rights expert and former police ombudsman for Northern Ireland, who said his amendment would introduce “a far less specific test, and consideration must be given to setting standards for the level of communication which is required”.

She asked Lord Falconer whether his amendment would “inadvertently disadvantage those with specific learning difficulties and similar vulnerable groups”.

Lord Falconer insisted that the amendment was “not a watering down at all” but he said he would discuss Lord Shinkwin’s concerns with him before the next stage of the bill, although “at the moment, it looks to me to offer just as good, if not better, protection”.

Peers have now dealt with only six groups of amendments, out of the – currently – 84 they will need to get through to move onto the next stage of the bill in the Lords, with further debate planned tomorrow (Friday).

The Hansard Society said this week that if the Lords continued at its current pace it would “far fall short of what is needed to complete the remaining groups in time”, with parliament’s current session due to end in the spring, probably in May.

11 December 2025

 

 

Scottish and UK governments are failing to uphold disability rights, says watchdog

The Scottish and UK governments are both failing to uphold the rights of disabled people in key areas, according to an annual report by Scotland’s human rights watchdog.

Two of the 10 areas of “urgent concern” highlighted by the Scottish Human Rights Commission in its State of the Nation 2025 report focus on continued breaches of disabled people’s rights.

The report – presented this week to the Scottish parliament – says the support for people with learning difficulties and autistic people to live in their own homes is “inadequate”, with many forced to live in accommodation that is “institutional, inappropriate, and not in the area that they would call home”.

The Scottish government has failed to put in place the necessary community-based support to deliver the right to independent living, it says.

It also points to the lack of “transparency and monitoring” to ensure action in this area meets human rights requirements.

The report also warns that disability benefits fail to provide a “decent standard of living” and are at risk of being cut, even though disabled people are more likely to live in poverty than people living in households where no-one is disabled.

Disabled people and disabled people’s organisations told the commission last year that social security payments that are meant to cover additional disability-related costs for daily living “are in fact being used to cover basic household expenses such as food”.

Disabled people are “going without enough income to meet costs” and facing rising debt, and are often unable to pay for fuel, including the cost of charging their medical equipment.

The report adds: “Despite these impossible choices, UK politicians have been actively considering further cuts and changes to disability support.”

And, it says, some of the proposed policy choices “actively undermine the rights of disabled people”.

It particularly highlights the £50-a-week cut to the health element of universal credit for most new claimants, from next April, which is happening at a time when disabled people “are struggling to make ends meet”.

The cut, it says, “is particularly inconsistent” with the UK government’s obligation to realise rights progressively under the UN International Covenant on Economic, Social and Cultural Rights.

Despite the UK government failing to rule out future cuts to spending on personal independence payment (PIP), the Scottish government – which is now responsible for its own version of the extra costs benefit, adult disability payment (ADP) – has “indicated that it does not intend to change ADP to reduce spending”, the report says.

But it says that the Scottish government has still not demonstrated that it has taken a human rights approach to budgeting “that both aims to ensure there is no worsening of disability-related poverty” and, where there is such poverty, to reduce it.

It adds: “Devolution is no excuse for failing to respect, protect and fulfil human rights.”

Derek, a disabled person interviewed for the report, says: “It feels like a lot of the human rights are being chipped away.

“We keep working away to make sure disabled people’s voices are being heard, but sometimes it can be disheartening, and I feel like I don’t have the energy.”

He has been supported by Glasgow Disability Alliance, and he told the commission: “My confidence came, not as an individual but from being involved in and as an ally to a movement.

“The barriers affect so many areas of life. It took me 20 years of fighting my local housing authority to get information in an accessible format, never mind accessible housing.”

Among the report’s calls for action from the Scottish government, it says the necessary housing and social care support must be in place to ensure a right to independent living.

And it says ADP and “other forms of social security and financial support to cover the costs of disability” must “meet those specific needs”, in line with the UN Convention on the Rights of Persons with Disabilities.

Other areas of concern highlighted by the report include healthcare provision; the housing crisis that is denying people across Scotland access to “safe, affordable and adequate housing”; high levels of food insecurity and unaffordability; and changes to the UK social security system that “disadvantage the most marginalised people and families”.

Professor Angela O’Hagan, chair of the Scottish Human Rights Commission, said: “People are struggling to heat their homes, feed their families, or access basic services, and this is fuelling real frustration and tension across our communities.

“At times like these, human rights matter more than ever. They provide the framework that requires public bodies to act fairly, protect people’s dignity, and direct resources to those who need them most.

“The most effective way to rebuild trust and reduce anger is to make these rights a lived reality for everyone.”

She added: “This report is a clear call to action.

“We urge the Scottish parliament and all public bodies to use its findings to make better decisions about legislation, budgeting and service delivery.

“Human rights set the minimum standards that people in Scotland should be able to depend on, especially during tough times.”

Meanwhile, the Equality and Human Rights Commission (EHRC) has warned the UK government it is failing to uphold “fundamental” human rights, including access to healthcare for disabled people, the right to peaceful protest, and freedom from exploitation for migrant workers.  

In a new report, published on Human Rights Day, the commission assessed progress on some of the 302 recommendations (PDF) made by other UN member states at the UK’s Universal Periodic Review in November 2022.

The EHRC report says successive government disability strategies and action plans have failed to focus on improving health services for disabled people, despite data showing disabled people in England face greater barriers to healthcare and are more often on NHS hospital waiting-lists than non-disabled people.  

11 December 2025

 

 

Thousands of disabled people in one county should benefit from care charging legal case victory

Hundreds, or even thousands, of service-users in Kent should benefit from a legal case taken by a disabled woman who spent years over-paying care charges because the county council failed to tell her about crucial rules.

Kent County Council – which is now run by the right-wing Reform UK party after a landslide election victory earlier this year – has now backed down and agreed to do more to tell disabled people in the county how calculating their disability-related spending could reduce their care charges.

A disabled woman known as PXA had been forced to cancel her council-funded support because she could not afford the higher charges imposed in September 2024 when the council changed its charging policy, leading to her and thousands more disabled people in the county seeing sharp increases in their weekly care charges.

After seeking legal advice, she learned that she had been overpaying her care charges for years because her disability-related expenses had never been assessed.

PXA won permission for a judicial review of the council’s actions, but the local authority backed down and settled the case, days before a trial was due to begin last week.

The case revolved around the council’s failure to do enough to tell disabled people about the disability-related expenditure (DRE) system.

When calculating a person’s social care charges, a local authority must – if it treats their disability benefits as income – deduct what that person spends in DRE.

But Kent County Council’s policy since 2003 had been to deduct a standard amount for DRE and only to carry out an assessment of their actual spending if the disabled person asked for one.

The council set this standard amount at £21 in 2003, and reduced it to £17 in 2011, failing to increase it to allow for inflation for the next 14 years.

Legal firm Gold Jennings, which represents PXA and three other claimants, found that between them they had overpaid tens of thousands of pounds in care charges.

The firm believes there are “hundreds if not thousands” of other disabled people in Kent who were unaware that they should request an assessment of DRE to try to reduce their care charges.

The council’s own statistics show that, of about 16,000 individuals paying for their care in the county, only a few hundred had requested a DRE assessment.

Gold Jennings said PXA’s case was assisted by “compelling” evidence from the disabled people’s organisation Inclusion London, which used its virtual DRE assistant to highlight how disability-related spending for many people was likely to be significantly more than the £17 per week used by Kent County Council.

Even the council’s own figures – using individual assessments carried out in the 11 months after the September 2024 policy change – put average DRE at £55.46 per week.

Disabled people with this average level of DRE would have been overpaying care charges by nearly £2,000 per year.

PXA provided evidence that she had “never properly been told about DRE or that she could request an assessment”, said Gold Jennings.

The council has now agreed to make significant changes to its policy, including referring to DRE in its annual charging letters; providing clearer guidance in its DRE factsheet; and changing guidance to ensure council staff tell claimants about DRE and its importance in cutting charges.

It has also agreed to credit a “goodwill” amount to PXA to reduce her future care charges.

Svetlana Kotova, director of campaigns and justice at Inclusion London, said: “We are pleased with the outcome of this legal challenge and sincerely hope the changes that Kent agreed to make will enable many disabled people who use social care to keep more of their money.

“This case shows very powerfully the problems in practice with the DRE assessment process, which in theory allows disabled people to prove their extra disability costs so that they can keep more of their disability benefits, but is often unworkable.

“People don’t know about DRE and the process of claiming it is very complicated and often demeaning.

“It is wrong that people with very high support needs end up being overcharged for the essential care they need.

“This just pushes disabled people into deeper poverty.

“This is why Inclusion London have been campaigning to scrap care charging altogether.”

Clare Jennings, head of public law at Gold Jennings, said the consequences of the council’s actions were that her clients had been overpaying by thousands of pounds a year for their care, for many years.

She said: “I am deeply concerned that my clients’ situation is not unique and that there will be hundreds, if not thousands, of others like them in Kent, and thousands more in other local authority areas who operate similar policies, who have overpaid for their care, enriching local authorities by tens of millions of pounds.”

A council spokesperson said: “Faced with increasing demands for complex care, rising costs of care and a lack of adequate funding from central government, we are having to take tough decisions to make sure future essential services are sustainable.

“Unlike a number of other UK councils, Kent County Council delayed using powers given to local authorities under 2014’s Care Act to take into account higher, or enhanced, rates of disability benefits when assessing how much people should contribute to the cost of their care.

“Following public consultation in 2024, the decision to change this policy and increase the amount some people contribute to the cost of their care was not taken lightly and we included a £900,000 contingency in the budget to help with increased disability-related expenses.”

11 December 2025

 

 

Other disability-related stories covered by mainstream media this week

Health secretary Wes Streeting is launching an independent review into rising demand for mental health, ADHD and autism services in England. It will look at both whether there is evidence of over-diagnosis and what gaps in support exist: https://www.bbc.co.uk/news/articles/ce8q26q2r75o (this confirms the launch of a review that DNS first reported on two months ago: https://www.disabilitynewsservice.com/alarm-over-governments-choices-to-lead-over-diagnosis-review-that-could-help-ministers-cut-benefits/)

The Conservatives have begun a policy review to slash the scope and cost of the benefits system, with Kemi Badenoch saying an “age of diagnosis” for “low-level mental conditions” was fast making it unaffordable. While it is up to the review to come up with specific policies, the Conservative leader hinted that some payments could become time-limited, saying one element would examine “at what stage support should come in, and how long it should last”: https://www.theguardian.com/society/2025/dec/09/badenoch-announces-tory-review-of-which-conditions-qualify-for-benefits

Senior Scottish politicians fear there could be a risk of “death tourism” from terminally-ill people travelling from other parts of the UK to end their lives in Scotland. A cross-party group of MSPs, including deputy first minister Kate Forbes, said the looser controls on eligibility written into an assisted dying bill for Scotland could attract people who are unhappy with stricter rules planned for England and Wales. The Scottish bill is expected to have its final vote in February: https://www.theguardian.com/society/2025/dec/10/scotlands-looser-rules-on-assisted-dying-could-lead-to-death-tourism-say-senior-politicians

A new strategy focusing on disabled people in Northern Ireland will go out for public consultation. Communities minister Gordon Lyons outlined details of the draft plan on Tuesday in the assembly. Disabled People Against Cuts has already issued a briefing paper spelling out the draft strategy’s “failures”: https://www.bbc.co.uk/news/articles/cm21zg3jlxdo

One of the most senior civil servants in the Department for Work and Pensions (DWP) has placed the blame for the carer’s allowance benefits crisis on victims, many of whom have been left with life-changing debts. In an internal blogpost written for Whitehall colleagues, Neil Couling, director general of DWP services, said individual failings by carers were “at the heart” of the issue that has been likened to the Post Office Horizon scandal: https://www.theguardian.com/society/2025/dec/06/senior-dwp-civil-servant-blames-victims-for-carers-allowance-scandal

Scottish Labour’s education spokesperson has quit over her friendship with a convicted sex offender. Disabled MSP Pam Duncan-Glancy resigned after the Daily Record approached her and her party about her links to disgraced former councillor Sean Morton: https://www.dailyrecord.co.uk/news/politics/scottish-labour-education-spokeswoman-quits-36358285

11 December 2025

 

News provided by John Pring at www.disabilitynewsservice.com

 

Oct 302025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

DWP’s plans ‘in tatters’ as McFadden scraps white paper on further disability cuts 1

‘Shocking’ figures show parents linked to DWP service face death rates up to three times higher 3

Former detective exposes culture of disability discrimination within ‘institutionally disablist’ Met 6

Committee calls cuts bill ‘discriminatory’, even though all its Labour MPs voted for it 10

Disabled people warn of ‘severe’ consequences if chancellor removes Motability VAT exemption 13

Disabled people face ‘systemic’ barriers in accessing community equipment, parliamentary inquiry finds 16

Regulator’s annual report shows impact of social care crisis on disabled people 18

Other disability-related stories covered by mainstream media this week 19

 

 

DWP’s plans ‘in tatters’ as McFadden scraps white paper on further disability cuts

Ministers have dumped plans for a major white paper containing a swathe of further cuts and reforms to disability benefits, following months of activism by disabled people and allies that forced the government into a major U-turn this summer.

Work and pensions secretary Pat McFadden, who only took on the role last month, confirmed the move in a meeting with representatives of disabled people’s organisations (DPOs) earlier this month.

One DPO said yesterday (Wednesday) that the admission was a “major success” for disabled people who fought the summer cuts bill.

But DPOs also warned that activists would need to keep up the pressure on ministers because McFadden had made it clear that, despite abandoning the white paper – which is likely to have significant political implications for the Labour government – individual measures would be taken forward.

He insisted in the meeting – first revealed this week by Greater Manchester Coalition of Disabled People – that further reforms would go ahead, but they would be introduced individually rather than all together in a white paper.

The white paper was set to be based on many of the measures outlined in the Pathways to Work green paper, and responses to a subsequent public consultation.

The results of that consultation should be published before the end of this year.

The decision to bin the white paper means that many of the reforms suggested in March’s green paper – including removing the health element of universal credit for those under 22; reform, and possibly cuts, to Access to Work; a time-limited replacement for contributory employment and support allowance; scrapping the work capability assessment; and changes to the safeguarding, conditionality and sanctions regimes – are likely to be announced separately over the coming months.

Some – but not all – of the reforms will still require legislation.

McFadden’s admission that he had dumped the white paper was made in a meeting on 14 October with Fazilet Hadi and Svetlana Kotova from umbrella organisation DPO Forum England.

Hadi, head of policy for Disability Rights UK, told Disability News Service (DNS): “I definitely think that the amazing campaigning from disabled people and our allies against the PIP cuts has left the government feeling very bruised.

“The change of heart in publishing a DWP white paper, and the delay in launching the SEND white paper, bear this out.

“Having said this, Pat McFadden has been moved to DWP to drive through cuts to social security, so the lack of a white paper doesn’t mean that there won’t be further threats to the benefits of disabled people.

“It just means that those threats won’t all come at once.”

Kotova, director of campaigns and justice at Inclusion London, agreed.

She said: “There is a pause, but it does not mean reforms won’t be coming.

“And we need to keep the pressure and persuade or force the government to switch its focus from cutting benefits or ‘fixing us’ to be more work ready to putting resources and its attention to making workplaces more inclusive.”

Among their arguments in the meeting, she said, was for the government to move money from employment support towards the Access to Work scheme.

Steve Darling, the Liberal Democrat work and pensions spokesperson, has lodged a parliamentary question about the “deeply disturbing” situation after being alerted by DNS.

He said: “At the time of a cost-of-living crisis, it is concerning that the secretary of state could be moving away from a more thoughtful, considered approach, to one more driven by cuts than by strategy.

“This will only add to the stress and uncertainty that disabled people are facing with the threat of more cuts to disability benefits next year.

“I have therefore asked the secretary of state a named day parliamentary question to find out when (if at all!) the white paper will be published, to try to shed some light on this fraught situation.”

Rick Burgess, from Greater Manchester Coalition of Disabled People, who first revealed publicly that the white paper had been dumped, told DNS: “They are not confident that they will get a big piece of legislation through parliament anymore.

“It shows we really scared them. It’s a huge embarrassment for them. All their plans are in tatters, and they are afraid of losing another showdown in parliament.

“A Starmer government couldn’t survive another drubbing.”

But he said he did not think ministers had changed their attitudes towards welfare reform, only that they were not confident they could push a large bill through parliament.

And he said it would be much harder for disabled people to stop a stream of smaller reforms, and that “keeping track of them is going to be really tricky”.

Linda Burnip, co-founder of Disabled People Against Cuts, said the government’s move to drop the white paper was “obviously a major success for disability rights activists and the many months of campaigning”.

But she said it appeared likely that ministers would use secondary legislation to “sneak things through in dribs and drabs and hope changes won’t be noticed”.

McFadden told Fazilet Hadi and Svetlana Kotova at the meeting that no decisions had yet been taken on barring under-22s from the health component of universal credit, and that it was a priority of his to get more young people into work.

They said he seemed to indicate that time-limiting contributory benefits would be taken forward relatively soon.

Hadi said: “We emphasised the need for government to join up its policies on disabled people and to coproduce solutions with us.

“We urged him to move funding to the Access to Work scheme from the additional money being spent on employment support.”

Reforms – and almost certainly cuts – to personal independence payment are expected to follow next autumn, following a review being headed by Sir Stephen Timms, the minister for social security and disability.

Sir Stephen today (Thursday) launched the review, and announced his disabled co-chairs – Dr Clenton Farquharson and Sharon Brennan – as well as a recruitment process for the 12 members of a steering group that will jointly lead the review.

He said the majority of this steering group would be disabled people or representatives of DPOs.

DWP had not commented on McFadden’s admission by noon today (Thursday).

30 October 2025

 

 

‘Shocking’ figures show parents linked to DWP service face death rates up to three times higher

Parents who pay to support a child through the Department for Work and Pensions (DWP) and its Child Maintenance Service (CMS) face death rates up to three times higher than others the same age, according to “shocking” and “deeply troubling” new figures.

Analysis by Disability News Service (DNS) has shown that, for every age group between 20 and 54, those who use the service – known as “paying parents”* – face a much higher rate of death than those of the same age who do not have to deal with the CMS.

DNS carried out the analysis using figures obtained from DWP through a freedom of information request.

The request followed concerns raised by campaigners who have called for an inquiry into the deaths of parents driven to take their own lives by DWP’s refusal to correct errors in child support demands.

The figures, which are particularly exaggerated for younger age groups, have been passed to the Commons work and pensions committee, which is at the early stages of an inquiry into concerns about CMS.

Among the inquiry’s aims will be how to “improve the way it deals with families”, and concerns over how CMS calculates payments, and enforcement of its decisions.

The DNS analysis shows that, for all those aged 20 to 24 in England and Wales, the rate of deaths in 2024 was 0.04 per cent, compared with 0.13 per cent for CMS paying parents (more than three times higher).

For those aged 25 to 29, the rate of death was more than twice as high for paying parents, and for those 30 to 34 it was twice as high (0.12 per cent versus 0.06 per cent).

The difference in death rates narrows for older age groups, but there is still a substantial difference for every group analysed by DNS, with CMS paying parents aged 50 to 54 facing a death rate of 0.46 per cent in 2024, compared with 0.34 per cent for all adults in that age group.

Results for 2022 and 2023 show similar, striking differences.

Over those three years, there is not a single age group between 20 and 54 – the only groups examined in the analysis – where the death rates are not higher for paying parents than for all adults in England and Wales.

Although the figures do not show how many of these deaths were suicides, they do add strong evidence to the claims of campaigners who believe the higher rates of death for paying parents are at least partly caused by errors by CMS and its toxic culture, including its refusal to correct its mistakes. 

DWP said this week that it was carrying out reforms aimed at streamlining CMS but that it did not “recognise” the DNS figures or any suggestion of a causal link between the actions and culture of CMS and the deaths of paying parents, although it did not point out any errors in the DNS calculations.

Ian Briggs, from research and campaign group STOPS (StopSuicides UK), which focuses on the harm caused by CMS, said: “I, and many others, have long known that the CMS and the DWP have been responsible for driving many parents to suicide.

“For years we have tried to highlight this to the DWP, yet every attempt is met with the same denial – that there is no link between the CMS and suicides.

“Even when presented with clear and credible evidence gathered by the STOPS group, the official response from ministers has remained one of outright dismissal.”

His son Gavin took his own life five years ago.

The coroner at Gavin’s inquest refused to investigate his father’s claims that the actions of the CMS had contributed to his decision to take his own life, even though the agency had wrongly claimed he owed £16,000 in support payments, after claiming his income was £76,000 rather than the £26,000 it was in reality.

Ian Briggs said this week: “The mortality rates recently revealed through John’s** research and exposed by Disability News Service cannot all be explained away as coincidence.

“While not every death may be due to suicide, these figures reveal a deeply troubling pattern that demands urgent scrutiny.

“At some point, there must be a full and independent public inquiry into these disturbing facts and the systemic failures within the CMS and DWP that continue to destroy lives and families.

“I would like to personally thank John and Disability News Service for… exposing these shocking mortality rates, and for giving a voice to the countless families – like mine – who have suffered unimaginable loss.”

Craig Bulman, who was left with PTSD after the Child Support Agency mishandled his case – the agency, the predecessor of CMS, eventually paid him a £5,000 consolatory payment – said the figures uncovered by DNS were “shocking”.

He told DNS: “Even allowing for statistical margins, the death rates you’ve calculated are deeply disturbing and point to something seriously wrong within the Child Maintenance Service.”

The Child Support Agency’s failings left Bulman homeless, triggered a mental breakdown, and caused the loss of his job.

He said this week: “These figures confirm what families have been warning for years – that the Child Maintenance Service is operating without proper oversight or duty of care.

“Death rates among paying parents are up to three times higher than the national average, and yet the DWP has failed to investigate or publish these findings. 

“This now warrants an independent inquiry under the Inquiries Act 2005.”

In January 2023, during the final session of a previous inquiry into CMS by the Commons work and pensions committee, Labour MP Debbie Abrahams told of a paying parent whose arrears had been inaccurately assessed “and the frustration that he found ultimately led to him taking his life”.

She said his mother had previously written to DWP “expressing real concerns about mental health” but there had been no reply.

She added: “This is not the first time. We had a panel before Christmas that also provided data about the suicides of paying parents who were inaccurately assessed in terms of the arrears that they owed.

“This is tens of thousands of pounds that they said that they owe, leaving literally pounds for them to exist on.”

She asked Tory work and pensions minister Viscount Younger at the time if DWP collected data on suicides of paying parents.

He told her: “Could I just say that, being new into the department, I am already aware, having seen some of the correspondence that I have had to look at and sign off on, of some absolutely tragic cases?

“It is absolutely appalling that cases can lead to people taking their own lives.

“That is dreadful and we must look at all ways in which we can avoid that or have systems and processes that do not lead to that.”

Despite those comments, a DWP spokesperson said this week: “Over 780,000 people engage with the Child Maintenance Service, many of whom are experiencing a difficult time in their lives, and all staff are trained to support vulnerable customers.

“We do not recognise this data or suggestions of a causal link between the CMS and deaths among parents.”

*Child maintenance covers how a child’s living costs are paid when one of the parents does not live with the child

**DNS editor John Pring

***The following organisations are among those that might be able to offer support if you have been affected by the issues raised in this article:  Mind, Papyrus, Rethink, Samaritans, and SOS Silence of Suicide

30 October 2025

 

 

Former detective exposes culture of disability discrimination within ‘institutionally disablist’ Met

A culture of institutional disability discrimination within the Metropolitan police is exposed today by the former head of its disabled staff association.

Dave Campbell, who retired this year after serving 32 years as a police officer, has told Disability News Service (DNS) that he believes disability discrimination within the force is rampant and that the Met is institutionally disablist.

He believes this “corporate culture” impacts how the force engages with disabled members of the public.

Campbell was chair of the Met’s Disabled Staff Association (DSA) for six years, and he was also vice-president of the Disabled Police Association of England and Wales.

His disclosures come only days after DNS revealed that prosecutions of disability hate crime across the country were continuing to plummet, with police forces in England and Wales passing on just a tiny proportion of recorded cases to prosecutors.

For six years, Campbell repeatedly tried to persuade the Metropolitan Police Service (MPS) to act on his concerns, before his retirement earlier this year.

It was his intervention that ensured the recent Casey review of the force’s internal culture and standards of behaviour examined the treatment of disabled people, when its initial focus was on racism, sexism and homophobia.

He believes the review provided an “alarming insight into how disabled people feel about their place in the organisation”, as he told Met commissioner Sir Mark Rowley in a letter last year.

He has told DNS that the upper levels of the Met have made it clear through their actions and inflexible policies – which he says marginalise disabled staff, and stem from outdated attitudes – that they do not want people who become disabled to continue serving as police officers in the force.

He says several disabled officers and staff have left the force because of their disability-related treatment and have written directly to the commissioner expressing their “despair and concerns”, without receiving any acknowledgement.

Over the four years between 2019 and 2023, he says, more than 200 disability discrimination employment tribunal claims were taken against the Met, including a significant number which included claims of race or gender discrimination.

The Casey review found an even higher number – 358 – in the five years between 2017-18 and 2021-22, but it was criticised by disabled campaigners for concluding that MPS was institutionally racist, sexist and homophobic, but not that it was institutionally disablist.

Campbell believes the number of disability discrimination tribunal cases increased after the Casey review by up to 60 per cent in 2023-24 compared to the previous year, while the DSA received hundreds of emails from distressed colleagues about the way they were being treated by their managers.

He has told Sir Mark that disability-led internal grievances are also at a high level, while many of his members had “no confidence or trust in the grievance management process” or in the ability of the Culture, Diversity and Inclusion directorate – set up after the Casey review – to produce change.

In the wake of Casey’s report, Campbell – as DSA chair – commissioned an independent review of disability inclusion and workplace adjustments in the force, by the Business Disability Forum (BDF), which reported its findings in September 2024.

Disabled colleagues in the DSA were asked if they had witnessed or personally experienced unfair treatment at work through disability-related harassment, bullying or discrimination, and 358 of the 775 who responded to the survey said yes (46 per cent), and another 123 (16 per cent) said maybe, a total of 62 per cent.

Of 504 police officers, 49 per cent said yes, and 15 per cent said maybe, a total of 64 per cent.

Of the 775 responses from disabled officers and civilian staff, less than 20 per cent (160) agreed with the statement: “MPS is an organisation that recognises and values disabled people.”

And just 65 (eight per cent) agreed that “feedback and complaints are listened to”.

One respondent said: “If you treated any of the other protected characteristics as you did disability then there would be uproar and heads would roll.”

Campbell believes the BDF report supports the view that MPS is institutionally disablist.

He told Sir Mark in last year’s letter: “In my experience Disability discrimination in the MPS is viewed less significantly and addressed differently in comparison to Race, Homophobia, Gender or any other type of Discrimination…”

In an earlier letter to Sir Mark, in 2022, Campbell told him: “There needs to be a change in attitudes [towards disabled officers] and an end to conscious labelling, as sick, lame, lazy, shirker, which are all derogatory terms yet seemingly acceptable…”

He has yet to receive any “tangible” response to the concerns he raised in last year’s letter and the survey report.

Campbell, a detective sergeant before his retirement, has himself twice taken successful action against the Met for disability discrimination, winning the first case at tribunal and then securing an MPS settlement before the start of a tribunal for the second case.

He describes himself as a person of ethnic origin, and has experienced intersectional discrimination, which he says is widespread in the Met.

He said the same complaints are being made “time and time again” at tribunal and through the force’s internal grievance process, which shows there is a “systemic” problem and failure to address these issues through an absence of “corporate memory” and a lack of “morality”.

Currently, about 3,500 police officers have adjustments made for them to allow them to continue in their roles, he said, out of about 36,000 officers in total across the force.

Campbell believes the number of MPS disabled officers and civilian staff may be as high as 10,000 – almost a quarter of the workforce – because many staff do not share their impairment with the force “due to concerns of how they will be treated”.

The Met’s DSA has more than 6,500 members and has 37 peer-to-peer support networks for disabled staff.

Campbell says he has increasingly been coming across incidents where the force’s occupational health department is making recommendations for adjustments to be made for officers who become disabled – often caused by their duties – but managers are refusing to agree to these adjustments.

Instead, officers are often told: “If you cannot do the job then you should just leave,” or: “This isn’t the right job for you.”

He told DNS: “We are just hitting a brick wall. This is about holding the police to account for systemic behaviour both internally and externally.

“If these attitudes exist towards disabled people in the workforce, what hopes do disabled people have when they become victims of crime?”

Louise Holden, Inclusion London’s senior policy officer for disabled people and crime, said: “I admire Dave Campbell and his tireless work within a disablist organisation.

“I share Mr Campbell’s concerns about how the Met treat disabled victims when their attitude to their own disabled staff is so appalling.

“Things have gotten worse since the A New Met for London plan following the Casey review.

“The work Inclusion London was involved in stopped and the new structure is a closed shop.

“Community confidence is at an all-time low.

“There has been no follow-up to the Casey review and with the Met decision to stop investigating non-hate crime incidents, without any consultation, it’s clear the Met is just not interested in disability issues.

“There has been no radical reform, only half-baked gestures and platitudes that amount to nothing.

“We are calling for renewed engagement with us, so we can support the Met with our expert knowledge on these issues.

“I hope the Met is ashamed of how they have behaved since the Casey review and want to work with us again.”

Commander Simon Messinger, the Met’s professionalism and senior lead for disability, said: “We are fully committed to driving positive change across the Met and fostering a culture of inclusion, and have taken significant steps to improve how we support disabled colleagues.

“This progress has helped us to achieve Disability Confident level three status, the highest level of recognition within that scheme, which reflects our determination to improve how we recruit, retain, and support our staff.

“We know there is much more to be done and will continue to work with the Met police Disabled Staff Association, and partners such as the Business Disability Forum, to drive further progress.”

A spokesperson for the mayor of London said: “The mayor is clear there is no place for harassment or discrimination in the workplace and is committed to working with the Met police to deliver a New Met for London where everyone can thrive.

“Since the Baroness Casey review in 2023 the Met has implemented a number of improvements for disabled employees, including the introduction of disability passports, Disability Smart assessments and the force is now a Disability Confident employer, improving how they recruit, retain and develop disabled staff.

“But there is more to do and the Met is working closely with the Disability Independent Advisory Group and the new chair of its Disabled Staff Association to listen and act on concerns to deliver a fairer and more inclusive Met.”

*If you have information about a police officer or member of staff who works for the Met and is corrupt or abusing their position and power, you can call the force’s anti-corruption and abuse hotline anonymously on 0800 085 0000

30 October 2025

 

 

Committee calls cuts bill ‘discriminatory’, even though all its Labour MPs voted for it

A Labour-led committee of MPs has called the government’s universal credit cuts act “discriminatory” and warned that it will push disabled people into poverty, despite every one of its Labour members voting for the legislation in July.

The Universal Credit Act will see the health element of universal credit halved for most new claimants from 6 April next year, from £105 to £54 a week.

All seven Labour MPs on the committee* voted for this cut in July.

But Labour’s Debbie Abrahams, who chairs the committee, said this week: “This is not only discriminatory, but without mitigations, will potentially push more people with disabilities and health conditions into poverty, exacerbating their condition and pushing them further away from the labour market.”

She was commenting on the publication of the government’s response to the committee’s report on the Pathways to Work green paper.

Her committee’s report had called on the government to delay the cut to the health element until it had carried out an “independent and comprehensive assessment of the impact the change could have on disabled people”.

But in this week’s response, the Department for Work and Pensions (DWP) dismissed those concerns.

Instead, it pointed to the “sustained, above inflation increase” to the standard allowance of universal credit (UC), which will also be introduced through the bill.

It said that this, together with the cut to the health element, would address “perverse incentives in the UC system and better encourages those who can work to enter or return to employment”.

Asked why she had voted for the cut to the health element when she thought it was discriminatory and would push more disabled people into poverty, Abrahams told Disability News Service (DNS) in a statement: “I worked very hard to secure major concessions on removing the cuts to PIP and people currently on UC health in the welfare bill.

“The bill isn’t perfect, and that was reflected in the work and pensions Pathways to Work report and its recommendations.

“However, voting against the bill would have meant that the increase in the standard allowance wouldn’t have gone ahead, and that was seen as a major positive aspect of the bill.

“This increase is not just for this year, but for each year until the end of this parliament.

“I am still continuing to work hard on securing mitigations around the reduction in support for newly disabled people from April next year and I remain committed to ensuring disabled people across the country have access to the support they need.”

Meanwhile, DWP has refused to explain to the committee what assessment it made of the bill’s impact on safeguarding, before the legislation was introduced to parliament earlier this year.

The bill had originally included steep cuts to personal independence payment (PIP), before a backbench Labour rebellion – following three months of activism from disabled people and allies – led to those measures being removed.

But there has been almost no discussion in parliament – and little or no information from ministers – on the bill’s potential impact on safeguarding claimants.

In its response to the committee’s report, DWP has made no mention of safeguarding, although it said that it had carried out an equality impact assessment for the bill.

But the impact assessments published on parliament’s website make no reference to safeguarding.

Asked by DNS why it failed to respond properly to the committee’s recommendation to release its assessment of the bill’s impact on safeguarding, and whether it did assess the safeguarding implications of the original bill, DWP said it was looking to improve its safeguarding approach, which included a review of the green paper consultation responses.

A DWP spokesperson said: “Our welfare reforms package was appropriately advised and numerous protections were baked into our plans.

“We are shifting our focus from welfare to work, skills, and opportunities, so more people can move out of poverty and into good, secure jobs as part of our Plan for Change – backed by £1 billion a year for employment support by the end of the decade.”

Grassroots groups of disabled people, such as Black Triangle, Disabled People Against Cuts, the Mental Health Resistance Network, and the Spartacus network, spent years highlighting deaths linked to DWP’s actions.

Concerns have also been raised by relatives who have called for action after the deaths of their family members.

Some of the evidence linking DWP with the deaths of benefit claimants has come through prevention of future deaths reports written by coroners, several of which only emerged years after they were written.

Other evidence of persistent DWP safeguarding flaws has emerged through freedom of information requests to the department, which have revealed how hundreds of recommendations for improvements have been made by DWP’s own secret reviews into the deaths of claimants.

Some of these reviews showed DWP staff continuing to make the same fatal errors, year after year.

The evidence collected by DNS and others, stretching back more than a decade, has shown how DWP repeatedly ignored recommendations to improve the safety of its disability benefits assessment system, leading to countless avoidable deaths.

It also shows how DWP hid evidence from independent reviews, and how the department failed to keep track of the actions taken in response to recommendations made by its own secret reviews.

Evidence also demonstrates that the cultural problems within DWP extend far beyond the assessment system, touching all aspects of its dealings with disabled people in the social security system.

The evidence, compiled over the last decade by DNS and other journalists, academics and activists, shows systemic negligence by DWP, a culture of cover-up and denial, and a refusal to accept that the department has a duty of care to those disabled people claiming support through the social security system.

Much of that evidence has been brought together in a detailed timeline, as part of the Deaths by Welfare project headed by Dr China Mills and supported by Healing Justice Ldn, which works with marginalised and oppressed communities.

*Debbie Abrahams; Johanna Baxter; Damien Egan; Gill German; Amanda Hack; Frank McNally; and David Pinto-Duschinsky

**The Department: How a Violent Government Bureaucracy Killed Hundreds and Hid the Evidence, DNS editor John Pring’s book on the years of deaths linked to DWP’s actions and failings, is published by Pluto Press

30 October 2025

 

 

Disabled people warn of ‘severe’ consequences if chancellor removes Motability VAT exemption

Disabled people have warned of “severe” consequences if the chancellor goes ahead with reported plans to remove the Motability car scheme’s VAT exemption in next month’s budget.

Disability News Service (DNS) reported last week how the company that runs the scheme, Motability Operations, had warned that removing the VAT tax break entirely could impose an upfront cost of at least £3,000 on even the cheapest cars it offers.

There is no certainty that the chancellor will go ahead with removing the tax exemption entirely – which was revealed by the Times – and she may abandon the plans completely.

But the minister for social security and disability, Sir Stephen Timms, failed to deny plans to target the VAT exemption when asked by disabled Labour MP Emma Lewell on Monday about potential cuts to the scheme.

Instead, Sir Stephen said again that there would be no changes to personal independence payment until next autumn.

Yesterday, a Reform UK press conference on the party’s plans to slash disability benefits – particularly personal independence payment (PIP) – saw the party target the Motability scheme.

The party’s work and pensions spokesperson in the Commons, Lee Anderson, said the scheme had “got completely out of hand” and was “an absolute scandal”, and he suggested that all those receiving Motability cars should only be able to secure a “blue three-wheeler”*.

He said: “What’s wrong with that? Let’s go back to that.”

Meanwhile, disabled people who rely on Motability to maintain their independence have told DNS this week of the drastic impact that increased costs could have on their ability to afford a car through the scheme, and how this would affect their ability to work, enjoy leisure opportunities, and attend medical appointments.

Julia Dalton, a Motability customer for more than 40 years, relies on an adapted vehicle, which she says has allowed her “to work for over four decades, contribute taxes, and live independently” in east Yorkshire.

As an electric wheelchair-user, she needs a large vehicle with a hoist to lift her wheelchair into the car.

She said: “Without Motability, I could never have afforded a suitable vehicle.

“It is not possible for me to use a cheap second-hand car because if it breaks down, I cannot simply use a hire car that is not adapted for my needs.

“Without a reliable vehicle I would not have been able to get to work and would likely have lost my job.

“This scheme has protected my independence, wellbeing, and ability to contribute”.

She says that advance payments – on top of contributing the enhanced rate mobility component of PIP every month – have risen significantly in recent years.

Her latest vehicle in March cost her £4,000 in an advanced payment as well as £1,500 for essential adaptations.

She said: “I am managing financially, but even I would struggle to pay thousands more on top.

“If someone like me is at risk of coming off the scheme, what happens to those with less support?

“The consequences are severe: disabled people stuck at home; people losing work because they cannot travel; missed medical appointments; isolation.

“Motability is not a luxury. It is a lifeline.”

She added: “If exemptions are removed or costs continue to rise, we risk destroying a system that enables disabled people to live, work, and participate fully in society.

“I am deeply grateful for Motability. I want to see it protected for the future, so others can have the same opportunities that I had.”

Emma, from Leicester, told DNS that her Motability wheelchair-accessible vehicle (WAV) – which needed an advance payment of £4,500 – had made “a huge positive difference” to her life, and allowed her to continue to visit her dad after he had a stroke, firstly while he was in hospital, and then at home.

She said: “WAV taxis are expensive and difficult to arrange, and using public transport would have been impossible for me health-wise.

“Without that access, he might have declined further or needed residential care.

“The scheme has literally kept our family connected and independent.”

She said the knock-on effects of removing the VAT exemption – and the insurance premium tax, which is reportedly also being considered – would “make it even harder for disabled people to stay mobile”.

She said: “The knock-on effects would be huge — more reliance on carers, increased pressure on health and social care services, and greater difficulty getting to appointments or even maintaining social contact and contributions to society.

“If the tax relief were removed, I simply wouldn’t be able to afford a vehicle and would be stuck in my house even more.”

Richard, a Motability-user for 30 years, from the West Midlands, told DNS that the scheme was vital as a wheelchair-user living in inaccessible housing, and that he and many others would be forced to leave the scheme because it would become unaffordable if its VAT exemption was removed.

He has a progressive, neurological muscle-wasting condition and uses his Motability car to drive to a pool to swim, which allows him to keep the strength in his shoulders that he needs to pull himself up and down the stairs of his home.

Without the car, he would not be able to use the stairs and would end up in expensive extra care housing or a nursing home.

He said: “Being stuck at home would be very detrimental to my mental health.

“It will have similar effects on many, especially those who would have to give up work due to unaffordable initial payments.”

April, who has been a Motability customer for 15 years and lives in Lancashire, said the scheme has allowed her to maintain her independence and job and “gets me to and from my workplace safely and stress free”.

She has a small automatic hatchback which now requires a £1,000 advanced payment, when previously there was no advance payment required.

She said: “I fear these government proposals will make Motability pass these costs on to the scheme users – to the detriment of those struggling on low incomes and those needing larger adapted vehicles.

“The scheme must be preserved for those of us that need it to maintain our independence, to work, attend appointments, and to live decently, with dignity and safety.”

Michael Newbold, from Staffordshire, a Motability customer for more than 20 years, said the scheme was “essential” for him and his disabled wife.

He said: “I need a car for appointments and shopping, also for leisure.”

They have already had to cope with the council stopping paying for a personal alarm, and for the insurance on his stairlift.

He said: “It’s like little by little they are taking all the things that make life easier.

“Most people, in my opinion, will not be able to afford the VAT rise if they are in a similar position as me.”

Another customer, Phil, told DNS that he and his wife Kath would be “totally screwed” without their Motability vehicle.

They are both disabled, but it is Kath who is the Motability customer as she uses a powerchair following a spinal stroke, so she needs a WAV.

Phil said: “We had to find a £4,000 down payment for our WAV and when it has to go back [at the end of the lease] we’ll have to find the same if not more for the next vehicle.

“Adding VAT on top would make it unaffordable for us.”

Without the car, he said, they would be “totally isolated”, and they already both struggle with their mental health.

He said: “I can only believe others in the disabled community will be affected in the same way.

“My wife and I are from Bristol and it’s a city with an awful bus service so another reason the Motability scheme is so vital for us.”

*A reference to the Invacar that was provided by the government to disabled people up until the late 1970s, when it was replaced by the Motability scheme

**Motability Foundation, the charity that oversees the car scheme, is a DNS subscriber

30 October 2025

 

 

Disabled people face ‘systemic’ barriers in accessing community equipment, parliamentary inquiry finds

A cross-party group of MPs and peers has called on the government to draw up a national strategy to address the “deeply troubling” and “systemic” barriers that prevent disabled people accessing the equipment they need to live independently.

Hundreds of disabled people and professionals across the UK fed into the inquiry by the all-party parliamentary group for access to disability equipment, which found an “inconsistent” community equipment system that was in crisis due to fragmentation, underinvestment, and a lack of leadership.

The inquiry heard of disabled children missing school because the correct hoists had not arrived; disabled adults unable to live independently and forced out of their jobs because repairs to equipment were taking months; and carers driven to “physical and emotional exhaustion”.

It found too many disabled people faced long delays, unsuitable equipment and “a lack of joined up support” within the system, which provides equipment such as grab rails, hoists, wheelchairs, ramps, specialist mattresses, and assistive technology.

The group’s report includes findings of a survey from more than 600 users of equipment, carers, professionals and equipment-providers.

More than half of equipment-users who took part (55 per cent) said they believed services were worsening.

The same proportion said they did not have access to the equipment they needed.

One equipment-user told the inquiry that the support offered “barely scrapes the barrel of what people actually need to live their everyday lives.”

More than a fifth of those surveyed (22 per cent) said they had waited more than two months to receive their equipment once it had been approved.

The report heard of the experience of Rhys Porter, who has cerebral palsy, and went without essential equipment, including a hoist and home adaptations, for two years.

His parents had to help him use a commode seat in his bedroom and drag him into the family bathroom on a towel once a week.

He was only able to go ahead with vital surgery because the charity Newlife provided him with a portable hoist.

The report calls for a “cohesive” national strategy; funding reform of the current “fragmented” model; action to address lengthy waiting-times for assessments and equipment; improved communication with equipment-users and between local authorities, health bodies, and government departments; a national advisory board with service-user representation; and action to improve reuse and recycling of equipment.

Labour MP Daniel Francis, chair of the all-party group, said: “Across hundreds of testimonies, one message came through loud and clear: the system designed to support disabled children and adults is failing them.

“It is failing to deliver equipment on time, failing to provide the right support, and failing to listen to the very people it exists to serve.

“Under the current system we’re seeing children missing school, adults being forced out of work and carers injuring themselves.

“It’s failing patients, carers, and the sector alike, and it’s high time for the government to get a grip.

“Access to community equipment is not privilege, it’s a daily necessity.

“We need a national strategy for community equipment and clear leadership and accountability in its delivery.

“Ensuring everyone is given the right support at the right time is simply a matter of political will and commitment.”

The Department of Health and Social Care was unable to comment on the report by noon today (Thursday).

30 October 2025

 

 

Regulator’s annual report shows impact of social care crisis on disabled people

An annual report by the care regulator has highlighted how the continuing social care crisis is impacting disabled and older people who need support in their own homes.

The Care Quality Commission said in its annual State of Care report that the health and social care system remained “fragmented and under severe strain”.

It said that demand for local authority-funded support had continued to rise, while the job vacancy rate in adult social care was still three times higher than in the wider employment market.

And it said that more community services were “urgently needed” to support people to stay in their own homes for longer.

The report includes evidence from members of CQC’s Experts by Experience group, which has come from their own experiences of care and support and from talking to other service-users during CQC inspections.

Living in a rural area can particularly affect alternative options if a homecare agency is providing poor care, the report says.

One of the Experts by Experience told CQC: “The only other agency down the road hasn’t got any space for me. Where do you expect me to go?

“I’m telling you what’s wrong and the things I’m not happy with, but I don’t feel like I’ve necessarily got a choice to change that.”

CQC’s Experts by Experience said disabled people had told them how they had been “left to sit or lie in soiled or wet clothing for hours while waiting for their care worker to arrive”.

The report says: “As local authorities around the country increasingly look to make savings, it seems likely more will signpost people to support in the community, ration the care they do provide, and reduce the provision of other statutory and non-statutory services.

“As well as negatively affecting the health and wellbeing of those in need of social care support, this could increase the pressure on the health and care system and the voluntary, community and social enterprise sector, and further increase the burden on unpaid carers.”

As CQC only began implementing its new single assessment framework in January 2024, it is not possible to directly compare the latest ratings from its inspections with previous years.

Inspections have been focused on services where CQC information suggested people might be at risk.

The ratings produced through the framework for about 3,000 adult social care services (out of a total of about 20,000 services across England) show four per cent were rated inadequate, another 26 per cent were seen as requiring improvement, 67 per cent were rated good, and two per cent were seen as outstanding.

Professor Sir Mike Richards, CQC’s chair, said: “The Casey Commission will be an important step in reforming social care – but it won’t solve the core funding problem.

“We continue to call for long-term, sustainable funding for adult social care.”

30 October 2025

 

 

Other disability-related stories covered by mainstream media this week

Reform UK’s draconian plans to scrap the personal independence payment (PIP) for people with anxiety were last night labelled “cruel, heartless and reprehensible”. At a press conference in London, the party vowed to end PIP for claimants with “non-serious anxiety disorders” and introduce more regular reassessments for those who qualify: https://www.mirror.co.uk/news/politics/reform-uks-plans-rip-up-36150700

Journalist and former BBC presenter Mark Mardell was left feeling “humiliated” after he was told he could not board a Turkish Airlines flight due to having Parkinson’s disease and no doctor’s report. The broadcaster was unaware of this requirement and was shocked when he could not board his flight home from Istanbul to Gatwick: https://www.bbc.co.uk/news/articles/ce9dx4zgzjzo

30 October 2025

News provided by John Pring at www.disabilitynewsservice.com

 

Jul 282020
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

With credible media reports this week that the government is considering taking social care back into the NHS, it is worth knowing that disabled people in the 1960s campaigned for social care to leave the NHS and to become a duty of local government, not least because it would become more accountable.

This could be our era’s defining moment for defending the social model against the medical model.

The two documents below provide background research and extensive details on the campaigns for independent living in the 60s and 70s. Please fee free to circulate them, they are both Creative Commons for that purpose.

Tony Baldwinson

 

Alf Morris MP and the campaigning by disabled people that led to the 1970 CSDP Act – research notes

2020-06-11 Alf Morris MP and the campaigning by disabled people … (Final 2)

 

To and From Grove Road: Independent living, disabled people, social care, activists fighting segregation and abuse by Maggie Davis (Hines) and Ken Davis

2019 To and From Grove Road – Maggie Davis (Hines) Ken Davis – ISBN 9781913148089

May 262020
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
A picture of the front cover of the book titled: "The War on Disabled People: capitalism, welfare and the making of a human catastrophe by Ellen Clifford". Behind the text is the image of a man on crutches. The full background, including the image of the disabled man, is rendered in shades of red and black. The text is in white.
The War on Disabled People is now available to pre-order from Zed Books:
Zed are offering a discounted price but DPAC realises that the cost will still be beyond the reach of many people – not least because of the issues covered in the book.
We will be giving away a few free copies kindly donated by Zed to names pulled out of a hat on 15th June. To enter please email your name to mail@dpac.uk.net with ‘Book Draw’ in the subject line.
Very sadly the battle for accessible formats to be available is ongoing… watch this space.
Apr 102020
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

DPAC is aware that some disabled people are not receiving essential support and resources from their local Council that they need during the pandemic.

Disabled people with certain impairments and health conditions are among those most at risk from Covid 19. At the same time, the government and medical professionals have made clear that they will not even be admitted to hospital let alone prioritised for treatment. The situation many disabled people living in the community have been left in has then put them at much greater risk, without access to food deliveries or protective equipment for the personal assistants coming in and out of their homes to provide indispensable support with fundamentally important daily tasks such as eating, drinking, using the toilet and staying clean.

Some local authorities are operating good practices such as contacting everyone in their area with disability related support needs and co-ordinating deliveries of food and other supplies.

Sadly, others are not.

Inclusion London has produced a useful template letter for individuals who have not been provided with the PPE (Personal Protective Equipment) that they need for their personal assistants.
The letter can be downloaded here: https://www.inclusionlondon.org.uk/wp-content/uploads/2020/04/template-letter-re-LA-failure-to-supply-PPE.doc

Scope has information on their website about how disabled people can access food and other essentials during the pandemic, including how to register as a “vulnerable” person with the government in order to access priority deliveries from supermarkets. Go to: https://www.scope.org.uk/advice-and-support/food-and-essentials-during-coronavirus/

The link to register with the government as “vulnerable” can be found here: https://www.gov.uk/coronavirus-extremely-vulnerable

Disabled People’s Organisations have raised concerns about the creation of a government register of “vulnerable people” including data protection implications. There are 14 Million disabled people in the UK, qualifying for reasonable adjustments of one sort or another, but this register will only assist an anticipated 10% of disabled people. Read what Chris Fry of Fry Law has to say about the register here: http://www.frylaw.co.uk/archives/articles/dont-share-the-vulnerable-people-register/

Fry Law have developed a template letter to enable disabled customers to challenge supermarkets about lack of access to online delivery services. You can download the letter here: www.dpac.uk.net/2020/04/18010

DPAC understands that provision that is in place on paper (or on websites) too often fails to translate to provision on the ground to the people that need it. We also understand that not everyone will have the energy to both battle for your survival and share your experiences, but where possible within your individual circumstances we would like to hear about any difficulties you have faced or are facing in accessing the resources and support so that we can campaign for improvements – either using the comments below or by emailing mail@dpac.uk.net.

Apr 172019
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

The Future of Independent Living for Disabled People
Committee room 10, Houses of Parliament
1 – 2pm, Thursday 25 April 2019.

Hosted by Marsha De Cordova, Shadow Minister for Disabled People, in partnership with the Reclaiming Our Futures Alliance, Disabled People Against Cuts (DPAC) and the TUC Disabled Workers’ Committee

This meeting will launch of the Reclaiming Our Futures Alliance position statement on the future of independent living for Disabled people and findings from DPAC’s research into the social care postcode lottery.

Independent Living is of central importance to Disabled people’s lives, encompassing the meeting of our most basic human needs as well as the chance to take part in society the same as everyone else. It is often misunderstood and thought to be about doing things without support, but as Article 19 of the United Nations Convention on the Rights of Persons with Disabilities sets out, it is about having choice and control over our lives and the chance to be fully included in the community.

For independent living to be a reality for Disabled people, we need a system that provides the right type, amount, quality and range of support options. The current social care system is not up to the task and Disabled people’s experiences of independent living are going backwards while being subject to a dramatic post code lottery. This is not inevitable. Investment in independent living could create savings in other areas while supporting Disabled people to be active citizens. DPAC research into differences in social care provision and charging cross local authorities in England highlights the reasons why Disabled people need a national independent living system free at the point of delivery capable of meeting need in a way that is credible for the 21st century.

Please join us to hear from Disabled people and our organisations what the problems are with the current system but also our solutions for the future.

For more information or to book a place please email: mail@dpac.uk.net.

Aug 182018
 
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Call for evidence: Pre-paid cards for social care

Pre-paid cards (or payment cards) are increasingly being used by local councils as a way of making direct payments for social care. Instead of funds being paid into a Disabled person’s people’s bank accounts, funding is ‘loaded’ or paid into a card account. This means that councils can monitor in detail all transactions as they happen, and potentially may suspend an account, if they do not approve of how Disabled people are using the cards.

Across the country, Disabled people have been told by councils that they ‘have to’ use a prepaid card, even if they have been managing their own funding for many years (2).  We also know of a case in the South West where someone was threatened to a cut to their social care funding, unless they accepted a pre-paid card.

As payments usually have to be made online, or over the phone, using a card may also be inaccessible for some Disabled people.

This system has been promoted to local authorities by National Prepaid Cards Network (1) as a way of ‘clawing-back’ money and controlling the way Disabled people use direct payments. Advice to councils has included; ‘The prepaid card remains the use of the council which allows a wider range of sanctions to be applied tactically where required’

In 2017 the Independent Living Strategy Group (3) conducted research that showed:

  • Over a million pounds a year is spent on fees and operating the cards.
  • Just two card companies were providing services to most local councils using payment cards.
  • The way that councils use pre-paid cards varies widely across the country, with some using cards as way of restricting the way that direct payments can be used.

The ILSG also found that some councils are imposing pre-paid cards on Disabled people, contrary to the governments own guidance:

‘Whilst the use of such cards can be a useful step from managed services to direct payments, they should not be provided as the only option to take a direct payment The offer of a ‘traditional’ direct payment paid into a bank account should always be available if this is what the person requests and this is appropriate to meet needs.’ 4

(Or, as a Disabled activist pointed out recently; ‘If you are offered a pre-paid card for direct payments, you have a choice. You don’t have to have it!’)

However, despite this research and recommendations made by the ILSG to councils, there still seems to be widespread concern about pressure on Disabled people to accept a card and misinformation about their use.

If you have been offered a pre-paid card as the only ‘choice’, or been pressured to accept a card by your council, the Independent Living Strategy Group would like to hear from you.

  • Please note that they cannot, unfortunately, offer any support in any difficulty that you have with your Council but they will be raising concerns about prepaid cards with the Association of Directors of Social Services at a meeting in September. Any information you provide will not be used in any way which could identify you.

Please e-mail jennymorris.net@gmail.com

 (Article by Bristol and South West Disabled People Against Cuts)

 

References

1 https://prepaidnetwork.org.uk/guidance-resource/

2 https://www.communitycare.co.uk/2017/10/13/councils-use-prepayment-cards-risks-contravening-care-act-study-claims/

3 https://www.inclusionlondon.org.uk/campaigns-and-policy/comment-and-media/payment-cards-must-support-not-restrict-choice-control-users-direct-payments/

4 https://www.gov.uk/government/publications/care-act-statutory-guidance/care-and-support-statutory-guidance

 Posted by at 20:48
Aug 092018
 
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https://www.independent.co.uk/news/social-care-funding-uk-government-local-councils-proposals-local-government-association-lga-a8470361.html

https://www.local.gov.uk/about/news/lga-launches-own-green-paper-adult-social-care-reaches-breaking-point

 

Have your say on the future of adult social care – respond to the Local Government Association’s (LGA’s) survey.

The consultation, which is the largest ever launched by the LGA, will last for eight weeks and will shape the LGA’s demands ahead of the Budget, due in the autumn.

Izzi Seccombe, chair of the LGA’s Community Wellbeing Board, said: “People have a right to live the life they want to lead and high quality adult social care and support plays an essential role in this. It is also vital to society. It strengthens communities, reduces pressures on the NHS, supports around 1.5 million jobs and contributes as much as £46bn to the UK economy.

“But work to find a long-term funding solution for adult social care and support has been kicked into the long grass by successive governments for the past two decades and has brought these services to breaking point.

“It has created a deeply uncertain and worrying future outlook for people who use adult social care services now and the growing number of people who will need them in the future.”

The LGA has produced their own ‘green paper’ and would like your views on it. Things you might want to consider are -:

  • should care be free at the point of delivery,
  • should it be funded through taxation,
  • should it be delivered by local government or should alternatives be considered,
  • should the postcode lottery be ended and a national system of social care be put in place working in a similar way to which the ILF did.

You may not want to answer all of the questions in this consultation or feel they are all relevant to you but please answer those that you can and ask others to as well. Do also give examples of how the current system is failing to meet your needs either due to charging policies, refusal to provide help with specific tasks or unmet needs you have.

To complete the consultation, please read the LGA’s green paper and then submit your views via the online form, which is available at:

https://futureofadultsocialcare.co.uk/the-green-paper/have-your-say/

 Posted by at 20:10
Jun 032018
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

sadly neither Welsh Labour not the national DPO – Disability Wales whose funding of course comes via Welsh Labour are supporting this vital campaign.

 

Please find below an important Thunderclap that we should all get involved in to help save the Welsh Independent Living Grant, #SaveWILG. 

This grant allows disabled people with high care and support need to live independently and was introduced by the Welsh Government following the closure of the ILF. 

Unfortunately, the Welsh Government have decided to follow England’s lead and pass all responsibility for social care to Local Authorities. This cannot be allowed to happen as we all know the problem this has caused to our friends in England. This fight is important to disable people across the UK as if we manage to win the battle in Wales, it will add strength to the arguments for three tier support in England.

This is a vital and easy way for  people to get involved with the campaign. Please encourage everyone you know, to take part and spread the message that we all want to save WILG, and deserve to have our voices heard.

The more pressure we can put on the Welsh Government, the better. On June 5th, when the thunderclap is activated, I will  be in Cardiff  at the Senedd, meeting with the Petitions Committee, Minister for Children, Older People and Social Care, Huw Irranca-Davies, Mark Drakeford AM and Julie Morgan AM.

We want to flood social media, and hope you will be able to spare one minute to help us achieve this aim. If this action succeeds, there will be future thunderclaps held.

Unfortunately, Thunderclap no longer allows targeted messages to prevent individual accounts being bombarded unfairly.

The message that will be shared across Twitter and Facebook reads as follows:

Welsh Labour need  to listen to their members and Save WILG for those with high care and support needs across Wales.

Anyone wishing to add memes or postcard photos to their social media accounts, can find plenty via my website or by simply contacting me via the contact page or on social media. I can’t make it much easier for you 

Many thanks for your support, and please do not hesitate to click on the following link:

https://www.thunderclap.it/projects/70260-savewilg

***

According to Wikipedia, Thunderclap is a platform that lets individuals and companies rally people together to spread a message. The site uses a model similar to crowdfunding sites such as Kickstarter, in that if the campaign does not meet its desired number of supporters in the given time frame, the organizer receives none of the donations. This is referred to as “crowdspeaking”, as Thunderclap and its rival site Daycause use the same terminology. [2][3] Backers are required to copy the original message in tweets or social media posts.[4]

 Posted by at 20:05
May 112018
 
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Annie has high support needs and was diagnosed with secondary progressive Multiple Sclerosis in  December 2009 and has become increasingly impaired.

After suffering excruciatingly painful spasticity in 2011 she spent 2 ½ months in Rehabilitation and on discharge in February 2012 was assessed by her Local Authority for care and was awarded 23 hours a week.

At the end of 2016 she collapsed and spent months last year in hospital.  They have said she will never walk again, and pain in her right arm since April has left her using a hoist since then.

But when she was reviewed on leaving hospital in May last year, her care package remained at a completely inadequate 23 hours a week and she was told she was lucky.  This despite the fact that in her current condition it scarcely gets her up in the morning.

She is now completely reliant on human support to live independently, unable to move, clean, toilet, dress, feed herself – or do anything.  She uses a hospital bed and wheelchair, and needs to be moved with a hoist by two people.

She is in constant pain, has spasms and severe spasticity yet she has been unable to access the extra hours of help she now needs.

She has no money and has had to borrow heavily from friends and family to survive and get some of the extra care she needs. This won’t continue to be possible.

Social services continue to fail to assess her needs, and have not provided her with a proper care plan since 2012. Like many others Annie has been stripped of her entitlement to legal aid due to the changes made by the Tories.

Thank you for taking the time to read this.  Any amount you can spare to help us pay for a legal opinion for Annie would help her and possibly others enormously. Any money donated and not used will go to Disabled People Against Cuts. (DPAC).

Please donate via GoFundMe or by paypal on the website. Mark any website donations for Annie.

https://www.gofundme.com/share/link/annie-needs-care-help-her-get-it

 

 

 Posted by at 20:53
Mar 192018
 
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NHS facing court action over unlawful policies

Published: 19 Mar 2018

NHS organisations are facing legal action over discriminatory Continuing Healthcare policies, the Equality and Human Rights Commission warned today.

The Commission has taken its first steps in judicial review proceeding by issuing legal letters to 13 Clinical Commissioning Groups (CCGs).This follows an initial warning issued by the Commission, which highlighted concerns about NHS Continuing Healthcare (NHS CHC) policies being unlawful and breaching the human rights of patients.

If the CCGs fail to provide evidence to demonstrate that their policies are lawful, or do not take steps to review them, they will be taken to court.

The Commission has raised significant concerns about blanket NHS CHC policies having arbitrary caps on funding and failing to consider the specific needs of individual patients, such as living location and family life.

This is a serious breach of the Human Rights Act, the Public Sector Equality Duty and the Department of Health and Social Care’s own NHS CHC framework.

Rebecca Hilsenrath, Chief Executive at the Equality and Human Rights Commission, said:

‘It is utterly unacceptable that anyone should be forced into residential care when they are healthy enough to live independently and with their families. And it doesn’t make sense for individuals or communities.

‘A “one-size fits all” approach will never properly address every single individual’s healthcare needs, and NHS CHC policies are no different. This is another example of individuals being disabled by society, and prevented from living as full and independent lives as possible, as is their right. We will use our powers to ensure that the NHS thinks about this again.’

The Commission first aired concerns over discriminatory NHS CHC policies in October 2017, when it wrote to 43 CCGs demanding more information on their approach.

Following this warning, almost a quarter of those contacted are now reviewing their policies and the Commission will be writing to the others whose policies are of less concern.

It will use its formal legal powers to initiate judicial review proceedings against 13, who it determines have not considered their human rights and equality responsibilities in the way they operate their policies.

NHS CHC provide funding for care outside of hospital, either in a care home, nursing home, hospice or a person’s own home, funded by the NHS to meet physical, mental health and associated social care needs.

The letters have been sent today (19 March 2018) and the CCGs have 14 working days to respond, after which decisions about starting court proceedings will be made.

Notes to editors

The Commission will be writing to the following 13 CCGs across England:

  • Brent
  • Coventry and Rugby
  • Dudley
  • East and North Hertfordshire
  • Eastern Cheshire
  • Harrow
  • Hillingdon
  • South Cheshire
  • Vale Royal
  • West Cheshire
  • Warwickshire North
  • Lincolnshire West
  • Redditch and Bromsgrove
 Posted by at 18:38
Mar 172018
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Dear Independent Living Campaign supporter,

You can watch footage and download the papers and briefings disseminated at the national conference on independent living organised by Disabled People Against Cuts in November 2017 here:  https://dpac.uk.net/2018/03/conference-notes-films-dpac-independent-living-campaign-conference-nov-2017/

We are also finalising a postion paper “Independent Living Support for the Future”, outlining our ideas for developing an independent living support system capable of upholding disabled people’s rights, based on the views and issues raised at the conference. Once we have a finalised version we will circulate for sign up and put in place communications and lobbying strategies to build support for our shared vision.

Updates since conference:

Disability Related Expenditure. Jenny Hurst has put together a template which you are all invited to contribute to in order to build a full picture of all the different things that can be included in DRE. Click the link below to add to it:

https://docs.google.com/document/d/1v5FT0Zyb9d61nJJlnE3Xpyl4YfqpgBrLPgqvubjCohE/edit?usp=sharing.

The Independent Living Strategy Group has also brought out a list of existing lists that can help when you are thinking what to include as DRE.

REAL’s guidance on DRE: https://www.real.org.uk/wp-content/uploads/2017/02/Reals-guidance-on-disability-related-expenditure-12-April-2017-PDF.pdf

Mencap: https://www.mencap.org.uk/advice-and-support/social-care/paying-support

DPAC: https://dpac.uk.net/2015/05/disability-related-expenses-what-could-you-claim-for/

DRUK: https://www.disabilityrightsuk.org/charging-community-care

And the government guidance on disability-related expenditure is available at: https://www.gov.uk/government/publications/care-act-statutory-guidance/care-and-support-statutory-guidance#charging-and-financial-assessment  (it’s towards the bottom of the webpage).

Simon Legg from the Spinal Injuries Association has also helpfully pointed out the 2003 practice guidance (attached) has a detailed discussion of disability-related expenditure and is arguably still valid.  He also sent a copy of a judgement which relates to disability related expenditure, also attached.

 

Campaigning against charging. Inclusion London will be organising a meeting for campaigners concerned about or involved in campaigns against charging – date to be confirmed –  to share experiences, find out about relevant legislation and explore how disabled people in different areas can more effectively co-ordinate to challenge the introduction of harsher policies, monitor their impact and campaign for the abolition of charging. If you are interested to find out more please email ellen.clifford@inclusionlondon.org.uk.

 

Lobbying government.

We believe it is important that Disabled people’s own voices are listened to within the government’s work-stream on social care for disabled adults. We have been collecting signatories a letter.

There is a Parliamentary inquiry into the long-term funding of adult social care. Inclusion London submitted evidence calling for an independent living support system funded from general taxation and free at the point of need: https://www.parliament.uk/business/committees/committees-a-z/commons-select/communities-and-local-government-committee/inquiries/parliament-2017/long-term-funding-of-adult-social-care-17-19/

 United Nations complaint. We have now heard that the complaint made under the UNCRPD Optional Protocol against the closure of the Independent Living Fund to new applicants has been accepted. The UN have written to the government who have until the middle of May 2018 to respond.

Media. In order to highlight the impact of the continuing social care crisis on disabled people, we are working with Cherylee Houston on features for Tonight and with the film-maker who produced “Dispossession: the great social housing swindle”.

 NICE guidelines on improving the experience of care and support for people using adult social care services: These are broadly positive but realistically are unlikely to change anything on their own in the terms of the cost-driven bad practice we are seeing within adult social care. Inclusion London fed back on the first draft and pleased a number of our recommendations were accepted, in particular that they now explicitly refer to the Human Rights Act which in our experience social care practitioners often do not give consideration to, but the Guidelines Committee refused to explicitly refer to the social model of disability, saying that the guidelines have been written from a social perspective so this is not necessary.  We are also disappointed that they did not make more explicit that cost concerns should not outweigh the needs and wishes of disabled people in care and support planning and assessments. https://www.nice.org.uk/guidance/ng86

 

 

 

 

 Posted by at 20:30
Mar 132018
 
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In November 2017 Disabled People Against Cuts and Disabled People’s Organisations involved in the Reclaiming Our Futures Alliance held a national Independent Living Campaign conference. The aim of the day was to take stock of the key barriers to independent living that Disabled people who use adult social care services face and assess how far the situation has deteriorated in the last year but also to explore a shared vision for an independent living support system that can truly uphold our rights.

Below you can find notes and films from the day as well as copies of hand-outs and presentations.

Notes from the conference: Independent living campaign conference notes Nov 2017

Opening plenary:

 

Workshop on assessments and reviews:

Reading by Penny Pepper’s:

Workshop on campaigning for rights to independent living:

 

Closing session:

Presentation slides:
• Opening session – Ellen Clifford presentation: Slides – introduction , Mark Harrison presentation: IL Campaign Conf 25 Nov 2017 (1)
• Campaigning for the rights to independent living (2)
• Charging and Financial Assessment (1)
• Co-operative alternatives for personal assistance

Papers disseminated at the conference:
• NHS Continuing Healthcare Cost-Caps – Where we are with Warehousing – Fleur Perry warehousing update
• Social Care is Broken Beyond Repair – So what should replace it? – Peter Beresford and Mark Harrison examine the problems and potential solutions Harrison and Beresford LB final
• The need to campaign against institutionalisation – Simone Aspis Simone blog

UN disability committee General Comment on Article 19: General Comment on Article19
Inclusion London Briefing on General Comment on Article 19: Briefing on General Comment on Article 19

Dec 092017
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
Sarah Graham – Freelance Journalist

#JournoRequest:Sarah wants to hear from disabled young adults (20-30ish) who are desperate to move out of their parents’ home but struggling to find the accessible housing they’d need to live independently.

Perhaps you’d need certain adaptations that housing providers and private landlords aren’t prepared to make, or your local authority doesn’t have enough accessible housing to meet the demand. You might even be considering buying your own place, and paying for the adaptations yourself, but that’s just not affordable right now. Whatever your situation, if you’re disabled and stuck living with mum and dad in your 20s, I’d love to hear about your experiences of trying to fly the nest.

Please email or message me if you can help – contact@sarah-graham.co.uk. It’s for a sensitive feature looking at the problems disabled millennials face accessing suitable housing – case studies do need to be happy being identified.

 Posted by at 17:28
Sep 292017
 
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Many thanks to Inclusion London for this useful analysis.

The Court of Appeal’s decision in the Davey case: what it means for DDPOs and Disabled people

Luke’s appeal was dismissed.  This is a devastating outcome for him as he won’t only be stuck at home with minimal support he also risks losing his support team, who were with him for 18 years.  The outcome is also disappointing and worrying for other Disabled people, as this case sends a message to local authorities that they can implement whatever cuts they want as long as they follow the right process.

Tracey Lazard interviewed outside the Royal Courts of Justice with a man in the foreground holding a placard reading 'Right2IL'

On the 1st of September the Court of Appeal handed down its judgement in the case of Davey v Oxfordshire County Council.  In this case Luke Davey, who is a former Independent living fund recipient, challenged a 40% cut to his personal budget after the closure of the ILF.

Luke’s appeal was dismissed.  This is a devastating outcome for him as he won’t only be stuck at home with minimal support he also risks losing his support team, who were with him for 18 years.  The outcome is also disappointing and worrying for other Disabled people, as this case sends a message to local authorities that they can implement whatever cuts they want as long as they follow the right process.

To us the case also clearly demonstrated the limits of judicial review in cases where disabled people are trying to argue against professional opinions of social workers.  Judicial review does not look at whether local authority made the right decision or the best decision; it looks at whether or not the decision was lawful.

The decision

The Court of Appeal confirmed that the decision to cut Luke’s personal budget was reached as a result of a lawful process.  Largely the judges agreed with legal analyses and the findings of Mr Justice Morris, who made initial decision in the High Court. Here are some of the most important points:

  • The duty to promote wellbeing in section 1 has 2 aspects: firstly it requires local authorities to take positive steps to promote wellbeing, and secondly it requires local authorities to pay regard to circumstances listed in section 1.3 of the Care Act 2014.
  • The assessment under the Care Act 2014 is an objective assessment, done by social workers of OT’s for local authorities
  • The wishes of the disabled person may be a primary influence, but they do not amount to an overriding consideration.
  • The UN Convention on the rights of Persons with Disabilities can be used to help interpret the law (with caution), however in this case no particular ambiguity was identified and the balance between person’s wishes and LAs views has been struck in the Care Act itself.  However the Court of Appeal acknowledged that this should not prevent from this point being raised in future proceedings.
  • The judge confirmed that the council was entitled to set a pay of PAs at a lower rate as long as it reflected local market conditions and  that the law did not require it to pay for a more expensive option, which was preferred by an individual. The judges were prepared to accept social worker’s view that the rates reflected local market conditions.  This however potentially puts into questions provisions in the Care and Support Guidance which say that local authorities should choose not the cheapest option, but the one that is best value for money.  The guidance clearly says they should go for an option that better promotes wellbeing and delivers the outcomes for an individual.

Our intervention

Inclusion London intervened in this case.  We wanted to show that the case was not just about Luke’s care package.  It could have an impact on many Disabled people.  Our intervention helped to draw media attention to this case and enable us to talk about our right to independent living in mainstream media.  We also believe our intervention helped to clarify the point that local authorities have to consider what might happen in the future when there is an imminent risk of negative consequences as a result of their decisions.

Besides the fact that Luke lost and the impact this will have on his life, the biggest concern in this judgement from our point of view is the statement about intensity of judicial review in social care proceedings.  The Court of Appeal effectively warned against overzealous analyses of social care assessments.  This is worrying, because life changing decisions are made based on those assessments, and unfortunately there is no other way to properly scrutinise them.  This is why we will continue to lobby for the appeals system, which was meant to be introduced by the Care Act 2014.

The fact that local authorities at the end of the day make final decisions about our needs and how we will be supported is not new.  The law has always said this.  However many of us felt disappointed when we saw the judgement.  This firstly is because the case clearly shows that in the age of austerity, when local authorities have to find significant savings, the provisions of the Care Act about choice and control do not have teeth.  It also is disappointing for us to see how our views can so easily be overridden by professional opinions of social workers and local authorities not being properly scrutinised for some of the decisions they make.

This was the first case brought under the wellbeing duty and it clearly demonstrated the limits of this duty.  It is worth bearing in mind though that the case was mainly lost because of factual evidence. (Luke couldn’t prove that his PAs of 18 years would leave and refuse to work for less)

Lessons for DDPOs

This case clearly shows that local authorities can get away with implementing even very significant cuts if they follow the process set out in the Care Act and can give a logical explanation to their decisions as well as commiting to reviewing the situation and stepping in if things go terribly wrong.

It does not mean however the cuts cannot be challenged; we can and should do this.  Here are some of the basic things you could do to increase a chance of success in your case:

  • Know the process well and challenge when it has not been followed;
  • Ask for explanations early on, ideally with references to the law. Although local authority can submit further explanatory evidence it will be difficult to do so if it contradicts what they said before.  For example if they are suggesting a cut to your support package, ask them to explain how this will promote your wellbeing;
  • Think of evidence.  If we want to challenge cuts, the onus is on us to prove the impact.  Just a statement from a disabled person will not always be enough. The judges will most likely accept social workers view, unless it is irrational;
  • Pay attention to the assessment process, prepare and clearly explain what you mean.  Make sure to ask for a correction of all factual mistakes in the assessment document;
  • Challenge decisions: yes this case was not successful, but it cannot and should not deter others from challenging cuts to their support.

We lost this battle, but we will keep fighting.

 Posted by at 20:18
Sep 252017
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Full story here -: https://www.disabilitynewsservice.com/disabled-activist-is-fighting-for-his-life-as-he-hands-petition-to-welsh-government/

Nathan Davies is fighting a lonely battle against the closure of the Welsh Independent Living Fund and devolution of funding to Local Authorities in Wales. Sadly the influential DPO Disability Wales saying they are unable to support his fight as it is too political.

Nathan has already been told his care and support funding would be slashed by more than half once the Welsh ILF is closed from April 2018.  This would mean Nathan could no longer take part in those community activities that are essential to his wellbeing and inclusion in society.

If you can please email any Assembly Members and ask them to retain a separate Independent Living fund in Wales. Disabled Lives Matter and the UN has said in their recent response to the periodic review of the UK that central governments are ultimately responsible for ensuring adequate funding for independent living.

If you live in Wales you can find contact details of your AM here https://www.assembly.wales/en/memhome/Pages/memhome.aspx

And if not in Wales email AM leader, Carwyn Jones Carwyn.Jones@assembly.wales

 

 Posted by at 14:31
May 042017
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Stop Camden Council cuts to social care

·       NO hiking up care & transport charges to older and disabled people

·       NO closing Netherwood dementia centre & others

·       YES to free homecare as in Hammersmith & Fulham

Camden Adult Social Care scrutiny committee meets about these plans onMonday 8 May 2017

Town Hall, Judd Street, London WC1H 9JE

King’s Cross/Euston tube

6.15pm  join Save Netherwood Campaign, People’s Centre for Change and WinVisible outside the Town Hall

7pm in Council Chamber – our deputations will speak to councillors, please come and support.

Image may contain: 17 people, people smiling, people standing

https://archive.camdennewjournal.com/sites/all/files/nj_camden/imagecache/main_img/images/news/Netherwood.png

Watch on webcast:

https://camden.public-i.tv/core/portal/webcast_interactive/285252

More info: WinVisible 020 7482 2496 win@winvisible.org

Yes to free, quality care —  we’ve earned it!

No to charging, rationing, profiteering and neglect.

 

 Posted by at 17:12
Feb 132017
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Meme for the Southampton Protest#CareHomesStink

 

#RightsNotTelecare

 

#SupportNotCuts

 

Details of the Protest in Southampton & Online

 

This letter has come from the leader of the council.


Dear Tim,
I appreciate that some of you prefer to demonstrate against the Labour Council rather than the Tory government. But if you are going to do this please have the decent thing and contact us and check whether the thing you are demonstrating against is true. I know we are in the era of ‘alternative’ truth and ‘false news but we do expect you to know better.

The Facts
1. The Care act came in in April last year and requires us to complete annual reviews of all those in receipt of a care package. This created an additional burden on our already stretched social workers. It was proposed and approved that the Council employ through Capita additional social workers to carry out these reviews.
2. No instruction was issued with regard to the outcome of these reviews. No incentive was given to Capita to save money we simply wanted the reviews done.
3. Capita were unable to recruit enough Social workers to complete the work and an offer was made to the ones they had to work some weekends for an extra payment (£200).
4. The vast majority of these reviews (all of which were carried out by fully qualified and registered social workers) lead to no change. Some were adjusted to change the way a service was delivered using modern technologies and these have lead to a saving to the Council. A saving that means less jobs will be cut this year and less other services reduced.
5. An appeals process exists with these assessments’ which has been used by precisely zero clients.
6. As part of our arrangement with Capita we are gradually taking over this work with our in house team working alongside Capita employees. We expect in due course to take over all these reviews.

These are the facts – so please tell me what you are demonstrating about.

Simon


So if those are the facts why do the leaked emails say – either the Labour council leader has no idea about what is happening in Southampton or -well – or he’s just downright lying. Take your pick.

1) From Sue Thomas, sent 15/9/16

Hi All,

The cavalry is on the way!!!

Have just heard from Adam Tait we have 3 new colleagues joining us on Monday, pulling the stops out to make sure they can ‘hit the road’ with you with the minim delay.

Adam is also suggesting some incentives for the Team. He is well aware of some of the difficulties we have had, and that you are giving me the best performance you are able.

But, now we need MORE!! The suggestions below are  cut & paste from Adams e-mail to me.

FROM ADAM’S E-MAIL

I’m not sure how weekend working might go down with the existing team (as a one off) but if we included these days we have an extra 4 days available for eight of the team people and two available for 11 of the team until we have TIB on 27th September. I would suggest we offer an extra incentive if any of the team are prepared to work these weekends or part of…. starting this weekend. It’s short notice but if we paid their existing rate at time and half or double time you may get some take up? I’m not sure if we would need to report these days within the MI suite but that’s not my call. An alternative might be payment of increased hours worked in the week. Again as a one off.

In addition, as the next week or so is so critical I am happy to roll out an extra incentive scheme at the earliest point whereby if a person manages to improve their performance by x% from the previous 4 week average they receive a £y bonus. 10% = £100, 20% = £200 etc. This can be measured across both productivity levels and the savings achieved. If one person improves their productivity by 20% and savings by 20% they receive a £400 bonus.

AGREED WEEK-END RATE TIME & HALF

PLEASE READ CAREFULLY AND CONTACT ME NO LATER THAN 5PM WITH YOUR RESPONSE (EVEN IF YIOU ARE NOT INTERESTED) THIS IS NOT A LONG TERM COMMITMENT – IT’S EMERGENCY FIRST AID TO ENSURE OUR SURVIVAL!!!!

If you want to discuss with me you’ve got my numbers.

Regards – Sue

Sue Thomas – Lead Practitioner,

Capita Review Team,

Adult Social Care,

Southampton City Council,

Southampton SO14 7LY


2) From Sue Thomas, 8 November 2016:

Good Morning,

Another late night last night – Conference Call. Followed by several hours ‘bashing my brains’ for answers.

PLEASE READ CAREFULLY – THIS IS VERY IMPORTANT

As you know our Productivity and the Financial Efficiencies we are making are under  great scrutiny.

Looking at all the figures in the Reports last night it was very clear that both Productivity and Efficiencies have fallen dramatically.

The senior managers who are leading this transformation want to know why it appears we are failing to realise the results in service delivery and savings they anticipated

By commissioning this Project. They in turn are being asked to explain to Councillors of SCC.

Issues such as changes to the Team, Reduced size of Team, Annual Leave, Bank Holidays etc. have all been taken into account but things still don’t add up.

I have stressed how hard you are all working – but we don’t appear to be getting the results we had during the Pilots.

As I said at the Team Meeting yesterday I think it may be about the ways in which we are working – IF IT’S NOT ABOUT HARD WORK, IT MUST BE ABOUT SMART WORK!!!

I HAVE PUT MY NECK ON ‘THE CHOPPING BLOCK’ – YOU HAVE PRODUCED THE RESULTS BEFORE, I KNOW YOU CAN AND I BELIEVE YOU WILL DELIVER THE RESULTS REQUIRED.

NOW I HAVE TO PUT MY MONEY WHERE MY MOUTH IS – PLEASE HELP ME!!!!!!

REMINDERS

  • BE ASSERTIVE WHEN MAKING APPOINTMENTS – SCC ARE REQUITRED BY LAW TO COMPLETE THESE ASSESSMENTS/REVIEWS (NEW LEGISLATION 2014)
  • AS MANY VISITS AS POSSIBLE BEGINNING OF THE WEEK – WEDNESDAY PM – RECORDING
  • CASE ‘OPEN’ DAY OF VISIT – MINIMISES DAYS CASE LEFT OPEN (ASSUMING INACTIVE/UNPRODUCTIVE)
  • CLOSE WHEN ANY REFERRALS HAVE BEEN MADE (MAX 2 DAYS)
  • L.D WILL TAKE A LITTLE LONGER – THIS IS RECOGNISED BY ALL.
  • 15 min. CALL OUT!! TELECARE –IN!!
  • ASSESS NEED NOT WANT.
  • ACTIVELY ENCOURAGE DIRECT PAYMENTS
  • CAREFUL ATTENTION WHEN RECORDING WORK SHEETS, YOUR WORK SHEETS INFORM THE WEEKLY REPORTS FOR THE DECISION MAKERS – DON’T SHOOT YOURSELF IN THE FEET!!
  • THE WORK SHEET IS CHANGING THIS WEEK PLEASE TAKE EXTRA CARE.

THINK ABOUT ASSET BASED ASSESSMENT, FOR THOSE OF YOU NOT FAMILIAR  I WILL BE SENDING INFORMATION.

We don’t have very much time to turn this situation around. if we can’t/don’t do it all the hard work you have put in so far will have been for nothing.

Not to put too fine a point on things WE ARE ALL ON THE WAY HOME.

I AM NOT ASKING YOU TO STAND BEHIND, ME I’M ASKING YOU TO STAND BESIDE ME SO WE CAN BRING THIS PROJECT TO A SUCCESSFUL (FOR ALL OF US!!) CONCLUSION TOGETHER.

Regards – Sue

Sue Thomas – Project Lead Practitioner,

Capita Review Team,

Adult Social Care,

Southampton City Council,

Southampton SO14 7LY


DPAC’s response to Simon:

  1. Capita offered their staff bonuses of up to £400 to cut people’s packages (Capita said  that this was never introduced but they haven’t denied that they made the offer).
  2. Capita’s freelance social workers were paid more than £1,000 a week (after tax) and put up in three-star hotels while they were encouraged to cut people’s packages.
  3. The emails clearly show that they were asked by the council to produce savings (ie cuts).
  4. The Council Leader says “. Some were adjusted to change the way a service was delivered using modern technologies and these have lead to a saving to the Council.” We do not believe Telecare is an acceptable alternative to human support and nor are packs of incontinence pads. If the council leader thinks the following email from a Capita manager is acceptable, then he should be ashamed of himself and needs to resign: The manager suggested an “extra incentive” for the team if they could improve on their previous “performance” and suggested that the bonus “can be measured across both productivity levels and the savings achieved. If one person improves their productivity by 20 per cent and savings by 20 per cent they receive a £400 bonus.” The council never commented on the ‘extra incentive’ email,  we can’t think why not.
  5. Does he also think the other email that was sent by capita to their team is acceptable? “The senior managers [from the council] who are leading this transformation want to know why it appears we are failing to realise the results in service delivery and savings they anticipated by commissioning this project. They in turn are being asked to explain to Councillors of SCC [Southampton City Council].”
  6. Another thing to note is that the whistle-blower said that it was the service-users with no support networks to advocate on their behalf with the council who were often the ones who were having their packages cut. This might explain why there have not been any appeals (if that’s true).
  7. I suspect that, if you take away the care packages that included residential care (which are almost impossible to cut), the proportion of direct payments packages that were cut is significant.
  8. I notice the council leader says that ‘No incentive was given to Capita to save money’. That doesn’t mean that they didn’t tell Capita that they wanted them to save money (which they did). My understanding is that Capita knew they would lose the contract if they didn’t make those savings. That seems like an incentive to me…
 Posted by at 14:24
Nov 202016
 
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For an ongoing legal challenge we urgently need to hear from anyone whose direct payment rates haven’t increased for years and who use agency carers and have been told by the agency that they can’t fully meet their needs because the hourly rate is not high enough.

We will need to pass contact details onto the solicitor dealing with this case so please could you add a phone number. You can email us at mail@dpac.uk.net

 

 Posted by at 16:29
Oct 242016
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

I’m Martyn and I sit on the NUS (National Union of Students) Disabled Students Committee.

This Wednesday (26th October) from 1pm, we will be launching a new campaign where we will be fighting the high prescription costs that the NHS has been charging over the last few years. While this area of work will mainly be focusing on students, we will also be looking at the impact that these prescription costs have on the general public as well as fighting the charges to either have them scrapped or heavily reduced.

The current cost of an NHS prescription is £8.40; and in the last five years alone medication costs have increased over £1. When you are on no or a limited income, this is a charge that is not needed and can result in an even greater financial pressure for us to just maintain a basic level of health. Furthermore it is bad enough when you have to pay this once, but when you have to pay this every month for several items the cost soon mounts up. Add on other costs such as optical and dental charges and this annual total can be too much for people on a decent income to afford, let alone disabled people.

Even though there are some financial options for saving money such as pre-payment certificates, this is still not enough. Similarly a few of us are lucky to be exempt from these charges for a variety of reasons, however the majority of us don’t qualify for this. With the increasing cuts that the government are placing on us, this is becoming even harder to get.

As such, we are launching and running the cut prescription costs campaign and it will be great if as many of you can support us as much as you can. From 1pm this Wednesday, it would be amazing if you could take to social media using the hashtag #freeprescriptions to both promote the campaign and share your experiences of prescription costs and having an impairment. There will also be further information coming shortly on the different things that we will be doing and working on in order to fight the prescription charges and have them cut. This will also be an indirect fight at the cuts that the government have been imposing on people like us who are disabled. Again, it will be great if you could support us and get involved with it. The more people there are, the stronger we can be and the more likely it is that we will win.

Furthermore, on November 19th, NUS and UCU will be marching through London against many different issues that we are facing. Disabled people’s issues such as these will be at the forefront of the demo. For further information, see NUS National Demo on Facebook or Google search it.

If anyone has any questions, wants more information or wants to be kept in the loop with what we are doing, feel free to drop me an email at: M.Brown18@uni.brighton.ac.uk

Our website is https://www.prescriptionchargescoalition.org.uk/

I will be keeping DPAC notified of everything that we are doing so that you don’t miss out on this campaign including any information and so that you can get involved with what we are doing.

I hope that many of you can get involved in some way. It will be amazing if you can take to social media from Wednesday at 1pm of promote our campaign AND share your experiences!

 

 

 Posted by at 18:28
Oct 212016
 
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As some of you will know there were changes in Blue Badge entitlement as a result of the introduction of PIP which meant that anyone who could walk regardless of other impairments such as Autism, MH or visual impairment were no longer able to qualify for a Blue Badge.

This change affected one of our supporters whose son had previously been entitled to a Blue Badge for around 30 years and the Local Authority involved refused to renew their badge when it ran out earlier this year. The result of that has been that the person became virtually housebound as he frequently had meltdowns and his PAs needed to be able to get him into the car quickly.

We referred this person to one of the solicitors we often work with Louise Whitfield of Deighton Pierce Glynn and we are delighted to report a very successful outcome.

Not only have the Local Authority backed down and renewed the Blue Badge but even without the case having to go to court The Department for Transport have agreed to carry out a review of the entire Blue Badge policy and its approach towards people with “non-physical disabilities.

The DfT have said: “I can confirm that the review process has now begun internally. The Department’s Blue Badge policy team is undertaking the review. They intend to involve the Department for Work & Pensions, Department for Health, lawyers, local authorities, DPTAC, disability organisations and mental health experts.  

They will look at how the scheme works for people with non-physical disabilities, with a view to ensuring that equalities issues are addressed and that the scheme continues to be sustainable for disabled people. Following the initial work, a public consultation is likely. Local authorities are also likely to need fresh guidance. It is not possible to give timescales at this stage but further information on the review will be provided in due course.”

 

 

 Posted by at 20:38
Dec 312015
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Independent Living Fighting Fund – donations needed now to support Disabled people hit by the closure of the ILF fight cuts to vital day to day support

DPAC is asking for donations for an Independent Living Fighting Fund to support individual Disabled people to challenge cuts to their social care support packages following closure of the ILF. The ILF campaigners fought fiercely against the closure, taking their protest right to the doors of the House of Commons chamber, exposing to the world the disgraceful way the UK government is treating its Disabled citizens. The Fund finally closed on 30 June but the fight is far from over. Disabled people hit by the closure need solidarity now more than ever as the cuts we all fought so hard to prevent start to kick in.

The government said the closure of the ILF was a transfer not a cut (https://www.theguardian.com/society/2015/jun/11/impact-of-changes-to-disability-benefits). This was a lie. Some notable Councils such as Hammersmith and Fulham have committed to protecting people’s support packages in the short-term but in other areas serious cuts are already starting to happen as former ILF recipients are re-assessed to determine the level of social care support their Local Authorities will continue to fund. In Waltham Forest for example nearly 90% of former ILF recipients have had their support package cut as a result of the closure of the ILF, with more than a quarter having a cut of 50% or more (https://www.disabilitynewsservice.com/independent-living-fund-shocking-drop-in-support-after-ilf-closure/).

Cuts of this level mean robbing Disabled people of independence, dignity and equality. It also places people at risk as tragically evidenced by the case of Amanda Richard (https://www.dailymail.co.uk/news/article-3266218/Disabled-mother-died-house-fire-24-hour-care-cut.html) who died in a house fire in Coventry after her support hours were cut. Forcing use of incontinence pads on Disabled people who aren’t incontinent is emerging as one common tactic, as is blanket removal of night-time support and increasing expectations on, often elderly, family members and neighbours. One former ILF recipient was told that if she wanted to continue attending her community choir, other members of the choir could assist with her physical needs in place of needing paid support hours. The reassessment of another made a recommendation for behaviour therapy in order to cope with the removal of their night-time support following closure of the ILF.

Disabled campaigners warned that the closure of the ILF signalled the end of independent living for Disabled people. Local Authority administered care and support has proven itself unable to consistently provide Disabled people with adequate support to live, work and study in the community with the same chances as non-Disabled people. The current crisis in social care funding means things are only getting worse as Councils consult on further cuts to community support (https://www.disabilitynewsservice.com/council-is-trying-to-push-through-care-cuts-without-proper-scrutiny/), meanwhile investing in the building of new ‘super care homes’ to house Disabled people en masse (https://www.disabilitynewsservice.com/threat-to-independent-living-as-council-plots-raid-on-high-cost-care/).

Having lost the legal challenge to quash the decision to close the ILF it is now imperative that support is available for each former ILF recipient at risk of cuts to essential support. There are a number of dedicated solicitors committed to providing legal advice, however changes to legal aid mean that some Disabled people are no longer eligible yet not in a situation where they can fund the legal action they need to challenge what is happening. It is also true that we cannot reach every former ILF recipient affected and we also know that many are too frightened to speak out for fear of losing what support they have got. Legal challenges are an important way of testing out the rights of former ILF recipients under the Care Act 2014 and making examples out of Local Authorities that are not meeting their legal duties.

This is why we need a fighting fund available to support legal challenges by former ILF recipients not eligible for legal aid.

What you can do:

  • Donate to the fighting fund. We have cases that need to be actioned in early January so the sooner you can give the better. To donate go through DPAC’s paypal or contact us via mail@dpac.uk.net for details for a BACS transfer. Include “ILF FF” as the reference.
  • Circulate this post to your friends, family and fellow campaigners asking them to donate too.
  • Donate through gofundme at https://www.gofundme.com/9up7iw
Jun 302015
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

 With thanks to Kate B Published on Jun 30, 2015

TRANSCRIPT

00.00 – 00.19

Today is a very, very sad and tragic day and I think some of us are starting to cry up the front here, because this has been a long campaign and it has been so important to so many people because it means so much, but this isn’t the end and I think what last Wednesday showed is that disabled people are strong when we unite with our allies, we fight back and we give them hell.

00.20

Save the ILF!

00.32

Whoa boy, Whoa.
I come in peace with my horse to save the ILF. We are fighting for independent living for disabled people in the UK in 2015. Can you believe that?

No.

We have had enough. The Independent Living Fund closes tomorrow and we are not going away. We are going to fight on.

1.05

The ILF has given me freedom. It has given me indpendence, to live my life the way I choose without being reliant on friends or family. Without being stuck to a regimented regime of getting up in the morning when it suits other people, to go to bed at 9 o’clock, I was 22 and I had to go to bed at nine o’clock, can you imagine. I was told when I could go to the toilet, once a day at one o’clock, if I wasn’t there on time then tough, I’d have to wait until a later call that evening. It’s just not just me, it’s thousands of people out there who are subjected to this.

1.39

This is from Leanne. Hi all, I wish I could be with you all today but unfortunately, I can’t but please know that I am with you all in spirit, this is not the end, it is just the beginning.

1.54

SINGING

2.07

There used to be a time when governments, particularly when the ILF came in when they were able to at least talk about independent living with a straight face and now when they do it’s very much with a forked tongue. When the ILF closes today, it is more than just the closure of a fund. I think it signifies very much the end of an idea and that idea was that society was very much prepared to meet its responsibilities to make sure that equality of opportunity was something more than words. And we took tangible steps like the Independent Living Fund which got people real lives beyond looking out the window and watching the world pass them by.

Jun 302015
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

It is often said that the Queen is special because she has two birthdays. But in fact, there are another 18,000 people who have two birthdays: the day they were born, and the day they received their first ILF payment.

My first ILF birthday was in 1988, when the Independent Living Fund was introduced. For people with high support needs, it was a great birthday, changing our lives overnight: we became part of our communities, went to college, got jobs, made friends, and generally did the things that non-disabled people take for granted. I met Mike and Darren who have become not only my personal assistants but also life-long friends.

ILF was a springboard for a new life, whereas Direct Payments are a safety net. Direct payments help you out of bed in the morning. ILF gave you a reason to do so. My fear is that we are going back to the days without hope or purpose.

In 1964, I became disabled. Not by being involved in an accident or being ill. I became disabled with one simple sentence from a consultant: “Mr and Mrs Punton, I am sorry to have to tell you but your child has got cerebral palsy.” From that moment, society believed that I had no purpose or future and prescribed special school followed by a life sentence in an institution. My parents disagreed, and I remember my Dad saying, “well, it is not rocket science that you shouldn’t let other people govern what you do.” And my Dad should know, because he was a rocket scientist!

But even so, I was still forced to live the life that society prescribed.

Then, in 1988, three things happened. Thirdly, I got my first job. Secondly, I moved into my first flat. Firstly, and probably most importantly, I applied and was accepted for ILF.

Without the first, I am sure the other two would not have been achievable. The ILF changed my life. It gave me access to the wider community of Birmingham and beyond. It allowed me to meet fellow like-minded people who taught me how to see myself in a different light and introduced me to the concept of social justice. It allowed me to work, start my own community interest company, and empower other people. I even stood as a candidate for parliament at the last election. Fortunately, the wisdom of the people prevailed! But because of ILF and the British democratic process, it is possible for me to sit here and speak to you. The question is, will Robert Punton the younger be able to do the same?

ILF has changed our lives, and how we see life. I am desperately sad that the decision of 2010 meant that an opportunity open to all was suddenly closed, which has led to it being labelled elitist. That was not the original intent or purpose.

On the 19th June 2015, we received our final instalments of ILF.  My concern, and the concern of thousands like me, is that come the first of August, the restrictions of the new definition of community care, will not allow me to continue to participate in my community and I will find myself returning to the lifestyle of pre-1988. If you will allow me a bit of poetic licence, I do not wish to return to the shadows of society but want to help light my community.

I would like to finish with a quote from Antoine De Saint-Exupery “The notion of looking on at life has always been hateful to me. What am I if I am not a participant? In order to be, I must participate.”

Please allow me and many like me the opportunity to participate.

 

 

 

 Posted by at 18:19
Jun 302015
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Reposted  from www.frameworkinclusion.uk with thanks

Today (30th June 2015) the Independent Living Fund is officially closed at midnight by a heartless Conservative Government –the working concept of independent living is effectively silenced. A fine campaign was, and will continue to be fought by ILF users and Disabled People against Cuts. On the 24th June ILF users and DPAC stormed the parliament in scenes previously unwitnessed in the British Parliament, but the fight began a long time before that day.  The fight for independent living for disabled people has been ongoing for decades; the fight to #saveilf began in 2010 when DPAC asked those affected by the closure to new users to come forward for a court case against the Government.

Disabled people have always had to fight for their human rights and equality. People marvel at the number of demos and direct actions that have been carried out, but its what disabled people have always needed to do. The ILF campaign has been a huge success in alerting the public, the press and TV nationally and internationally to the intense cruelty of a Government who declare they will support those in greatest need and simultaneously close the very efficient ILF which was doing just that. The closure makes no economic sense ILF had running costs of 2% while cash starved local authorities have an average of 16% running costs. On the same day as the closure a #disability confident event was being run in Swansea –this is beyond ironic and highlights the theatre of duplicity that this Government engage in. While ILF users face cuts in support, sometimes of up to 70% or face the fear of being institutionalised, while they face the loss of jobs, staff, PAs, education and life-our Government preaches #disabilityconfident .

We want to pay homage to all those that protested on the streets and online to #saveILF, as many others have said – this is not over- we go on fighting!  We will take back independent living on our terms so that it can never taken from us again- that work begins now.

It is a sad day today, but it also one of pride for the dignity, force and dedication disabled people and our allies have shown in the fight for ILF- the fight for independent living will continue, the continued exposure of what the Conservative Government have done to disabled people will be shouted loud and clear as we join with more and more allies in solidarity against the evil that is being done to us under the myth of austerity -our rage like our strength will grow till the human rights we deserve are ours.

Downing Street, London, UK. 30th June, 2015.  On the day the Independent Living Fund (ILF) closes and organised by Disabled People Against Cuts (DPAC), ILF recipients, campaigners and sympathisers meet outside Downing Street to hand over petitions calling on the Prime Minister to protect disabled people’s right to independent living. Over 25,000 signatures have been collected online supported by videos made by actors of Coronation Street and also during the Graeae Theatre Company’s 2014 UK Tour of The Threepenny Opera. After laying a wreath for the ILF, Schimmel, the battle horse of the Threepenny Opera led a march to the Houses of Parliament to continue the fight for dignity and equality. Last week, DPAC activists clashed with police inside the Houses of Parliament. Pictured:  A RIP ILF wreath was laid outside Downing Street. // Lee Thomas, Flat 47a Park East Building, Bow Quarter, London, E3 2UT. Tel. 07784142973. Email: leepthomas@gmail.com. www.leept.co.uk (0000635435)

Downing Street, London, UK. 30th June, 2015. On the day the Independent Living Fund (ILF) closes and organised by Disabled People Against Cuts (DPAC), ILF recipients, campaigners and sympathisers meet outside Downing Street to hand over petitions calling on the Prime Minister to protect disabled people’s right to independent living. Over 25,000 signatures have been collected online supported by videos made by actors of Coronation Street and also during the Graeae Theatre Company’s 2014 UK Tour of The Threepenny Opera. After laying a wreath for the ILF, Schimmel, the battle horse of the Threepenny Opera led a march to the Houses of Parliament to continue the fight for dignity and equality. Last week, DPAC activists clashed with police inside the Houses of Parliament. Pictured: A RIP ILF wreath was laid outside Downing Street. // Lee Thomas, Flat 47a Park East Building, Bow Quarter, London, E3 2UT. Tel. 07784142973. Email: leepthomas@gmail.com. www.leept.co.uk (0000635435)

 Posted by at 18:03